EVALUACIÓN DE SANGRADOS

TE DAMOS LA BIENVENIDA A LA HERRAMIENTA DE EVALUACIÓN DE SANGRADOS

Determinar si sangras demasiado no siempre es una tarea sencilla. Este test ha sido diseñado para ayudaros a ti y a tu médico a identificar si tus sangrados son normales o no.

El cuestionario se basa en una herramienta validada científicamente que han adaptado el Prof. Corrales y el Prof. Erik Berntorp1,2.

AVISO LEGAL

TÉNGASE EN CUENTA LO SIGUIENTE: Este cuestionario está basado en una herramienta validada científicamente que ha sido adaptada por el Prof. Corrales y el Prof. Erik Berntorp1,2 . Sirve para detectar la posible presencia de un trastorno de la coagulación. Está diseñado únicamente para fines informales y como guía para mantener una conversación con un profesional médico cualificado y colegiado. No se pretende en modo alguno que actúe en sustitución del asesoramiento y juicio médico profesional. Consulte con su médico o profesional sanitario cualquier pregunta o duda que tenga sobre los resultados de este test.

DATOS PERSONALES:  Antes de hacer el test, nos gustaría informarle de lo siguiente con relación a su privacidad:

  • Las respuestas que proporcione en este test se emplearán para crear una puntuación de riesgo de enfermedad de Von Willebrand (EVW).
  • Octapharma AG también almacenará y usará los datos que introduzca en el formulario con fines estadísticos únicamente relacionados con la prevalencia de la EVW, y solo se referirá a los datos que sean relevantes y adecuados para este fin.
  • En ningún momento se le pedirá que facilite ningún dato que pudiera identificarle.
  • El ID de usuario que se introduce al “repetir el test” solo permite que se relacione de manera directa la segunda evaluación con la primera evaluación realizada previamente. La estructura del formulario de la segunda evaluación es idéntica a la de la primera. En ningún momento se identificará personalmente al usuario.

Para obtener más información, consulte nuestra política de privacidad..

1. A quantitative analysis of bleeding symptoms in type 1 von Willebrand disease: results from a multicenter European study (MCMDM-1 VWD). Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, et al. J Thromb Haemost. 2006; 4: 766-73.
2. A need to increase von Willebrand disease awareness: vwdtest.com - A global initiative to help address this gap. Corrales-Medina FF, Federici AB, Srivastava A, Dougall A, Millar CM, et al. Blood Rev. 2023; 58: 101018.

Sexo *
Su edad *
País/Región *
Región *
Historia familiar de trastornos hemorrágicos. *

¿Algún miembro de su familia inmediata* ha sido diagnosticado con un trastorno hemorrágico?

*Padres, hermanos o hijos.

Paso {{questionIndex+1}}/{{questions.length}}

Su puntuación de sangrado es anormal

Esto indica que es posible que tenga un trastorno hemorrágico.

Tu puntuación

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Rango normal: 0-3

Gracias por realizar la prueba. Le recomendamos que descargue la carta de resultados y comente los resultados con su médico. Seguramente sus episodios de sangrado sean controlables. Su médico le ayudará a encontrar el tratamiento más adecuado para usted.

Los trastornos hemorrágicos, habitualmente, son hereditarios. ¿Sabes si otros miembros de tu familia sangran demasiado? Por favor, pídeles que se hagan el test.

Descargar carta de resultados

Tu puntuación de sangrado es normal.

Si sangra más en el futuro, repita la prueba. Y si no está seguro de la gravedad de sus sangrados, consulte a un médico.

Tu puntuación

{{nbPointsAnswers}}

Rango normal: 0-3

Esta prueba indica que usted no tiene un trastorno hemorrágico, pero no reemplaza una evaluación completa realizada por un profesional sanitario capacitado.

User ID: {{assessmentId}}

Your bleeding score indicates that you may have a bleeding disorder. However, this test is not a replacement for a complete assessment by a trained healthcare professional, and further information would be needed to make a proper diagnosis.

Please follow the steps below to ensure a full diagnosis.

Centers recommended for following up on the results with a von Willebrand specialist near your current location.

This letter is addressed to Health Care Professionals

Dear Colleagues,

My name is Erik Berntorp and I am a Professor in Haematology and Coagulation Disorders at Lund University in Sweden. As you may be aware, von Willebrand disease (VWD) is the most common bleeding disorder (affecting up to 1% of the world’s population) yet is still highly underdiagnosed. Together with other colleagues we have developed the VWDtest.com online platform, with the aim of improving the diagnosis of VWD. At the VWDtest.com website, users can complete a simple five-minute questionnaire to evaluate whether they may have a bleeding disorder or not.

In this case, the questionnaire has indicated that the user may have a bleeding disorder. We are here to help you identifying whether this person is affected by VWD. The support we provide includes advice on VWD diagnosis from world-leading experts as well as blood and plasma sample analysis in state of the art laboratories. These services are free of charge if the procedures below are strictly followed.

I hope you will benefit from the support of the VWDtest.com team and help us facilitating accurate VWD diagnosis.

How to proceed

- Following an abnormal bleeding test score, the individual has been asked to repeat the online bleeding questionnaire with their General Practitioner/Primary Care physician (GP/PCP). If this is you, please jump to the section “For GP/PCP” below.

- If the bleeding test results were similar when the test was repeated, the GP/PCP has been asked to refer the patient to a haematologist. If this is you, please jump to the section “For the haematologist” below.

For the GP/PCP

Please repeat the bleeding questionnaire together with your patient using the user ID (on the top right on the bleeding questionnaire results). Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

In case the bleeding score of your patient is 4 or above, please refer them to a haematologist. Please ensure that the haematologist is provided with the bleeding questionnaire results and informed about the purpose of this investigation.

In case the score is 3 or below, the patient does not need further investigation.

For the haematologist

Before contacting the VWD expert team, please execute the following blood tests:

  • Complete blood count
  • Activated partial thromboplastin time (APTT)
  • Prothrombin time (PT)
  • Fibrinogen
  • Platelet function assay (PFA)

Abnormalities in the above mentioned laboratory tests, together with a clinical anamnestic patient data could give a sign for VWD. You have the possibility to contact and discuss your patient condition with our VWD expert team.

After having performed these blood tests, please contact the VWD expert team:

If you have any clinical questions about VWD, please send an email to Dr. Fernando Corrales (ffc5@med.miami.edu) if you are located in the continent of America and to Prof. Erik Berntorp (erik.berntorp@med.lu.se) if you are located anywhere else in the world stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

For a free sample analysis service (this service is not available in the United States) helping you to diagnose VWD, please send an email to Dr. Anna Pavlova (Anna.Pavlova@ukbonn.de) stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Again, please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

Your email will be processed by the respective VWD expert, who will reply to you shortly. If you and the VWD expert team decide that further diagnostic tests are necessary, you may be asked to submit blood and plasma samples from your patient for analysis (detailed information on how to submit the samples will be provided to you). The submitted samples will undergo several tests, which may include: von Willebrand factor (VWF) antigen and activity levels, FVIII activity, VWF multimer analysis, and FVIII-binding assays. These tests will confirm or exclude whether the patient has VWD. In addition, if a VWD diagnosis is made, next-generation sequencing will be carried out to look for possible causative variations in the VWF gene.

This sample analysis service is free of charge, but only available upon explicit written request by a member of the VWD expert team. Any unsolicited sample submissions will be disregarded.

Support and advice on diagnosis and management options will continue to be available from the VWD expert team, free of charge, after the sample analysis results have been provided.

Yours sincerely,

Professor Erik Berntorp