Procena krvarenja

Dobro došli u našu procenu krvarenja

Nije uvek lako otkriti da li previše krvarite. Ovaj test je razvijen kako bi vama i vašem lekaru pomogao da otkrijete da li je vaše krvarenje normalno ili ne.

Upitnik je zasnovan na naučno potvrđenom alatu koji su prilagodili profesor Corrales i profesor Berntorp1,2.

ODRICANJE

MOLIMO ZABELEŽITE: Upitnik je zasnovan na naučno potvrđenom alatu koji su prilagodili profesor Corrales i profesor Berntorp1,2. Može se koristiti za otkrivanje da li je možda prisutan poremećaj krvarenja. Namenjen je samo u informativne svrhe i kao podrška razgovoru s kvalifikovanim, licenciranim zdravstvenim radnikom. Ni na koji način ne sme biti zamena za profesionalni medicinski savet i procenu. Trebalo bi da se posavetujete sa svojim lekarom ili zdravstvenim radnikom ako imate pitanja ili nedoumice u vezi s rezultatima ovog testa.

LIČNI PODACI: Pre ispunjavanja ovog testa, želimo da vas upoznamo sa sledećim informacijama koje se tiču ​​vaše privatnosti:

  • Odgovori koje date u ovom testu koriste se za stvaranje procene rizika za von Willebrandovu bolest (VWD)
  • Podaci koje unesete u ovaj obrazac takođe će biti sačuvani i korišteni od strane Octapharma AG, samo u statističke svrhe samo u vezi s prevalencom VWD-a, i odnosiće se samo na one podatke koji su relevantni i primereni za ovu svrhu
  • Ni u jednom trenutku od vas neće biti zatraženo da date bilo kakve podatke koji bi vas mogli lično identifikovati
  • Korisnički ID koji unesu "posetioci koji se vraćaju" omogućuje samo posredno povezivanje drugog ocenjivanja s prethodno urađenim prvim ocenjivanjem. Struktura oblika drugog ocenjivanja identična je prvom ocenjivanju. Korisnik ni u jednom trenutku neće moći biti lično identifikovan

Za više informacija pogledajte izjavu o privatnosti podataka.

1. Kvantitativna analiza simptoma krvarenja u tipu 1 von Willebrandove bolesti: rezultati multicentrične europske studije (MCMDM-1 VWD). Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, et al. J Tromb Hemost. 2006.; 4: 766-73. 2. Potreba za povećanjem svesti o von Willebrandovoj bolesti: vwdtest.com - Globalna inicijativa kao pomoć u rešavanju ovog jaza. Corrales-Medina FF, Federici AB, Srivastava A, Dougall A, Millar CM, et al. Blood Rev. 2023.; 58: 101018.

Pol *
Starost *
Država/regija *
Regija *
Porodična istorija poremećaja krvarenja *

Da li je bilo kom članu vaše uže porodice* dijagnostikovan poremećaj krvarenja?

*Roditelji, braća i sestre ili deca

Korak {{questionIndex+1}}/{{questions.length}}

Vaš rezultat krvarenja je abnormalan

To ukazuje da možda imate poremećaj krvarenja.

Tvoj rezultat

{{nbPointsAnswers}}

Normalni raspon: 0-3

Hvala vam što ste uradili test. Preporučujemo da preuzmete rezultate i porazgovarate o njima sa svojim lekarom. Postoji velika verovatnoća da se vaše krvarenje može kontrolisati, a vaš lekar će vam pomoći da pronađete pravi tretman za vas.

Pitate se da li previše krvare i drugi članovi porodice? Zamolite ih da urade test

Preuzmite rezultate

Vaš rezultat krvarenja je normalan

Ako budete krvarili više u budućnosti, ponovite test. A ako niste sigurni da li imate krvarenje, obratite se lekaru.

Tvoj rezultat

{{nbPointsAnswers}}

Normalni raspon: 0-3

Ovaj test pokazuje da nemate poremećaj krvarenja, ali nije zamena za potpunu procenu od strane obučenog zdravstvenog radnika.

User ID: {{assessmentId}}

Your bleeding score indicates that you may have a bleeding disorder. However, this test is not a replacement for a complete assessment by a trained healthcare professional, and further information would be needed to make a proper diagnosis.

Please follow the steps below to ensure a full diagnosis.

Centers recommended for following up on the results with a von Willebrand specialist near your current location.

This letter is addressed to Health Care Professionals

Dear Colleagues,

My name is Erik Berntorp and I am a Professor in Haematology and Coagulation Disorders at Lund University in Sweden. As you may be aware, von Willebrand disease (VWD) is the most common bleeding disorder (affecting up to 1% of the world’s population) yet is still highly underdiagnosed. Together with other colleagues we have developed the VWDtest.com online platform, with the aim of improving the diagnosis of VWD. At the VWDtest.com website, users can complete a simple five-minute questionnaire to evaluate whether they may have a bleeding disorder or not.

In this case, the questionnaire has indicated that the user may have a bleeding disorder. We are here to help you identifying whether this person is affected by VWD. The support we provide includes advice on VWD diagnosis from world-leading experts as well as blood and plasma sample analysis in state of the art laboratories. These services are free of charge if the procedures below are strictly followed.

I hope you will benefit from the support of the VWDtest.com team and help us facilitating accurate VWD diagnosis.

How to proceed

- Following an abnormal bleeding test score, the individual has been asked to repeat the online bleeding questionnaire with their General Practitioner/Primary Care physician (GP/PCP). If this is you, please jump to the section “For GP/PCP” below.

- If the bleeding test results were similar when the test was repeated, the GP/PCP has been asked to refer the patient to a haematologist. If this is you, please jump to the section “For the haematologist” below.

For the GP/PCP

Please repeat the bleeding questionnaire together with your patient using the user ID (on the top right on the bleeding questionnaire results). Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

In case the bleeding score of your patient is 4 or above, please refer them to a haematologist. Please ensure that the haematologist is provided with the bleeding questionnaire results and informed about the purpose of this investigation.

In case the score is 3 or below, the patient does not need further investigation.

For the haematologist

Before contacting the VWD expert team, please execute the following blood tests:

  • Complete blood count
  • Activated partial thromboplastin time (APTT)
  • Prothrombin time (PT)
  • Fibrinogen
  • Platelet function assay (PFA)

Abnormalities in the above mentioned laboratory tests, together with a clinical anamnestic patient data could give a sign for VWD. You have the possibility to contact and discuss your patient condition with our VWD expert team.

After having performed these blood tests, please contact the VWD expert team:

If you have any clinical questions about VWD, please send an email to Dr. Fernando Corrales (ffc5@med.miami.edu) if you are located in the continent of America and to Prof. Erik Berntorp (erik.berntorp@med.lu.se) if you are located anywhere else in the world stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

For a free sample analysis service (this service is not available in the United States) helping you to diagnose VWD, please send an email to Dr. Anna Pavlova (Anna.Pavlova@ukbonn.de) stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Again, please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

Your email will be processed by the respective VWD expert, who will reply to you shortly. If you and the VWD expert team decide that further diagnostic tests are necessary, you may be asked to submit blood and plasma samples from your patient for analysis (detailed information on how to submit the samples will be provided to you). The submitted samples will undergo several tests, which may include: von Willebrand factor (VWF) antigen and activity levels, FVIII activity, VWF multimer analysis, and FVIII-binding assays. These tests will confirm or exclude whether the patient has VWD. In addition, if a VWD diagnosis is made, next-generation sequencing will be carried out to look for possible causative variations in the VWF gene.

This sample analysis service is free of charge, but only available upon explicit written request by a member of the VWD expert team. Any unsolicited sample submissions will be disregarded.

Support and advice on diagnosis and management options will continue to be available from the VWD expert team, free of charge, after the sample analysis results have been provided.

Yours sincerely,

Professor Erik Berntorp