{"id":1091,"date":"2023-08-14T07:57:20","date_gmt":"2023-08-14T07:57:20","guid":{"rendered":"https:\/\/new.vwdtest.com\/ro\/?page_id=1091"},"modified":"2025-10-09T12:30:53","modified_gmt":"2025-10-09T12:30:53","slug":"family-doctor-paediatrician","status":"publish","type":"page","link":"https:\/\/vwdtest.com\/ro\/family-doctor-paediatrician\/","title":{"rendered":"MEDIC DE FAMILIE \/ PEDIATRU"},"content":{"rendered":"
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<\/p>\n<\/div>\n\n\"MEDIC\r\n\n\n

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Copiii cu VWD pot experimenta, de asemenea, provoc\u0103ri emo\u021bionale \u0219i comportamentale la \u0219coal\u0103 \u0219i \u00een cadrul vie\u021bii lor de familie, din cauza fricii de s\u00e2ngerare, iar s\u00e2ngerarea frecvent\u0103 poate duce la absen\u021be de la \u0219coal\u0103.4 <\/sup> \u00cen plus, teama de s\u00e2ngerare poate reprezenta \u0219i o povar\u0103 psihologic\u0103<\/a> substan\u021bial\u0103 pentru \u00eengrijitorii copilului \u0219i \u00eei poate determina s\u0103 limiteze activit\u0103\u021bile fizice \u0219i sociale importante pentru dezvoltarea normal\u0103 a copilului.5<\/sup><\/h5>

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Rolul medicilor de familie \u0219i al pediatrilor<\/h3>\n<\/div>\n\n
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VWD este cea mai frecvent\u0103 tulburare de s\u00e2ngerare la copii.6<\/sup> Simptomele hemoragice frecvente la copiii cu VWD includ \u00eenvine\u021birea cu u\u0219urin\u021b\u0103<\/a>, s\u00e2nger\u0103ri orale \u0219i nazale<\/a> \u0219i s\u00e2ngerare prelungit\u0103 de la r\u0103ni minore \u0219i dup\u0103 interven\u021bii chirugicale.2<\/sup> \u00cen calitate de medic de familie sau pediatru, vei fi adesea primul profesionist \u00een domeniul s\u0103n\u0103t\u0103\u021bii care va vedea copiii cu astfel de simptome \u0219i sarcina ta va fi s\u0103 determini dac\u0103 acesta prezint\u0103 o s\u00e2ngerare anormal\u0103 care necesit\u0103 investiga\u021bii suplimentare efectuate de c\u0103tre un specialist.7<\/sup> At\u00e2t pentru adul\u021bii c\u00e2t \u0219i pentru copiii cu o posibil\u0103 tulburare de s\u00e2ngerare, evaluarea istoricului de s\u00e2ngerare este primul pas c\u0103tre diagnosticare. Atunci c\u00e2nd se evalueaz\u0103 istoricul de s\u00e2ngerare al unui copil, este esen\u021bial s\u0103 fie luate \u00een considerare v\u00e2rsta \u0219i abilit\u0103\u021bile de dezvoltare ale pacientului. Sugarii care nu sunt \u00eenc\u0103 mobili prezint\u0103 rareori semne de v\u00e2n\u0103t\u0103i, dar pot prezenta s\u00e2nger\u0103ri neobi\u0219nuite dup\u0103 circumcizie sau prelev\u0103ri de s\u00e2nge.2,7<\/sup> Pe m\u0103sur\u0103 ce copiii devin mai mobili, zg\u00e2rieturile minore \u0219i v\u00e2n\u0103t\u0103ile de la lovituri sau c\u0103deri devin mai frecvente. Cu toate acestea, v\u00e2n\u0103t\u0103ile care sunt considerate mai mari sau mai frecvente dec\u00e2t \u00een mod obi\u0219nuit pot ridica suspiciunea unei tulbur\u0103ri de s\u00e2ngerare. V\u00e2n\u0103t\u0103ile ap\u0103rute \u00een locuri neobi\u0219nuite, cum ar fi spatele sau abdomenul, pot ap\u0103rea \u0219i la copiii cu VWD. Astfel de v\u00e2n\u0103t\u0103i pot fi confundate ca fiind semne de abuz asupra copiilor, iar p\u0103rin\u021bii pot fi \u00eengrijora\u021bi de aceast\u0103 posibilitate.8<\/sup> Pe m\u0103sur\u0103 ce fetele ajung la pubertate, s\u00e2ngerarea menstrual\u0103 abundent\u0103<\/a> devine cel mai frecvent simptom de s\u00e2ngerare \u00een VWD. C\u00e2nd se discut\u0103 despre aceste simptome cu pacien\u021bii \u0219i cu \u00eengrijitorii lor, este important s\u0103 fie luat \u00een considerare \u0219i istoricul de s\u00e2ngerare familial\u0103, deoarece s\u00e2ngerarea anormal\u0103 recurent\u0103 poate fi trivializat \u00een cadrul familiei.2,9<\/sup><\/p>\n<\/div>\n\n

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Stabilirea faptului c\u0103 simptomele de s\u00e2ngerare sunt anormale poate fi o provocare.7<\/sup> Pentru o evaluare ini\u021bial\u0103 a simptomelor de s\u00e2ngerare, \u00een special \u00een cazul pacien\u021bilor care au programat\u0103 o interven\u021bie chirurgical\u0103, recomandarea noastr\u0103 este s\u0103 \u00eei sugerezi s\u0103 face\u021bi \u00eempreun\u0103 testul nostru de s\u00e2ngerare<\/a>. Acest test te va ajuta s\u0103 iei o prim\u0103 decizie \u00een ceea ce prive\u0219te necesitatea efectu\u0103rii unor investiga\u021bii suplimentare \u0219i i-ar putea schimba via\u021ba pacientului t\u0103u!<\/p>\n<\/div>\n\n

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Un diagnostic definitiv de VWD este rezultatul unui proces elaborat.2<\/sup> Prin urmare, \u00een cazul \u00een care este indicat\u0103 o evaluare suplimentar\u0103 \u00een vederea diagnostic\u0103rii, \u00ee\u021bi recomand\u0103m s\u0103 contactezi un centru apropiat de tratament<\/a> al hemofiliei. Echipele multidisciplinare din cadrul centrului vor putea oferi \u00eengrijirea optim\u0103 pentru pacien\u021bii cu tulbur\u0103ri de s\u00e2ngerare. De asemenea, website-ul VWDtest ofer\u0103 informa\u021bii suplimentare despre etiologia<\/a>, diagnosticarea<\/a> \u0219i gestionarea VWD<\/a>, precum \u0219i o perspectiv\u0103 \u00een ceea ce prive\u0219te parcursul specific<\/a> pacien\u021bilor cu VWD. <\/p>\n<\/div>\n\n

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Referin\u021be<\/h6>\n<\/div>\n\n
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  1. Atiq F et al. EClinicalMedicine<\/em> 2021; 32:100726.<\/li>\n<\/div>\n\n
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  2. Corrales-Medina FF et al. Blood Rev <\/em><\/a>2023; 58:101018.<\/li>\n<\/div>\n\n
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  3. Patel PN et al. Int J Pediatr Otorhinolaryngol<\/em> 2017; 100:216-22.<\/li>\n<\/div>\n\n
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  4. de Wee EM et al. J Thromb Haemost<\/em> 2011; 9:502-9.<\/li>\n<\/div>\n\n
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  5. https:\/\/www.hemophilia.org\/sites\/default\/files\/document\/files\/nurses-guide-chapter-13a-child-development-with-bleeding-disorder-transition.pdf<\/a>; data ultimei acces\u0103ri – Mar 2023.<\/li>\n<\/div>\n\n
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  6. Klaassen R and Halton JM Paediatr Child Health<\/em> 2002; 7:245-9.<\/li>\n<\/div>\n\n
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  7. Van Ommen CH and Peters M. Eur J Pediatr<\/em> 2012; 171:1-10.<\/li>\n<\/div>\n\n
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  8. Jackson J et al. Child Abuse Negl<\/em> 2012; 36:127-34.<\/li>\n<\/div>\n\n
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  9. VanderMeulen H, et al. Hematology Am Soc Hematol Educ Program<\/em> 2022 1: 631-6.<\/li>\n<\/div><\/ol>\n<\/div>","protected":false},"excerpt":{"rendered":"

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