{"id":829,"date":"2023-04-28T14:26:00","date_gmt":"2023-04-28T14:26:00","guid":{"rendered":"https:\/\/new.vwdtest.com\/lv\/?page_id=829"},"modified":"2026-04-09T06:51:53","modified_gmt":"2026-04-09T06:51:53","slug":"i-live-with-vwd","status":"publish","type":"page","link":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/","title":{"rendered":"Es sadz\u012bvoju ar VS<\/strong>"},"content":{"rendered":"
\n
K\u0101das ir Villebranda slim\u012bbas \u0101rst\u0113\u0161anas iesp\u0113jas? K\u0101 vec\u0101kiem vislab\u0101k r\u016bp\u0113ties par b\u0113rnu, kam ir VS? K\u0101 atrast man piem\u0113rot\u0101ko \u0101rst\u0113\u0161anas metodi? K\u0101da noz\u012bme ir VS, pl\u0101nojot \u0123imeni? VS ietekm\u0113 manu soci\u0101lo un \u0123imenes dz\u012bvi: ko es varu dar\u012bt?<\/strong><\/h5>\n<\/div>\n\n
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Dz\u012bve ar Villebranda slim\u012bbu (VS) ir ce\u013cojums<\/a>, bet j\u016bs neesat viens. Neatkar\u012bgi no t\u0101, vai VS jums ir diagnostic\u0113ta nesen vai jau sen, katrs solis j\u016bsu ce\u013c\u0101 ar VS rada jaunus jaut\u0101jumus. Prof. Korraless-Medina<\/em> un prof. Berntorp<\/em>s un vi\u0146u kol\u0113\u0123i sniedz atbalstu, atbildot uz bie\u017ei uzdotajiem jaut\u0101jumiem par \u0161o slim\u012bbu, tostarp uz jaut\u0101jumiem par \u0101rst\u0113\u0161anu, gr\u016btniec\u012bbu un dzemd\u012bb\u0101m,<\/a> k\u0101 ar\u012b psihisko vesel\u012bbu.<\/a> J\u016bs atrad\u012bsiet ar\u012b praktiskus padomus, k\u0101 dz\u012bvot norm\u0101lu dz\u012bvi, slimojot ar VS.<\/p>\n<\/div>\n\n

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VS \u0101rst\u0113\u0161ana<\/strong><\/h2>\n<\/div>\n\n
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\u0100rst\u0113jot VS, jums k\u0101 pacientam vai k\u0101dam no pacienta vec\u0101kiem cie\u0161i j\u0101sadarbojas ar \u0101rstu. Kop\u0101, \u0146emot v\u0113r\u0101 j\u016bsu unik\u0101l\u0101s vajadz\u012bbas un apst\u0101k\u013cus, j\u016bs varat izstr\u0101d\u0101t individu\u0101lu \u0101rst\u0113\u0161anas pl\u0101nu. Individu\u0101li piel\u0101gots \u0101rst\u0113\u0161anas pl\u0101ns samazin\u0101s asi\u0146o\u0161anas risku un pal\u012bdz\u0113s jums saglab\u0101t iesp\u0113jami lab\u0101ko dz\u012bves kvalit\u0101ti.1<\/sup>

<\/p>

\nVS \u0101rst\u0113\u0161anas metodes<\/h2>

Visu tipu VS ir iesp\u0113jams efekt\u012bvi \u0101rst\u0113t. \u0100rst\u0113\u0161ana j\u0101izv\u0113las atbilsto\u0161i j\u016bsu VS tipam, asi\u0146o\u0161anas smaguma pak\u0101pei un veidam, k\u0101 ar\u012b jebkuriem citiem iesp\u0113jamiem vesel\u012bbas trauc\u0113jumiem. Liel\u0101kajai da\u013cai cilv\u0113ku ar VS \u0101rst\u0113\u0161ana ir nepiecie\u0161ama tikai oper\u0101cijas laik\u0101<\/a> vai p\u0113c traumas. Cilv\u0113kiem ar smag\u0101k\u0101m VS form\u0101m var b\u016bt nepiecie\u0161ama profilaktiska \u0101rst\u0113\u0161ana, lai nov\u0113rstu asi\u0146o\u0161anu. Lai sa\u0146emtu atbilsto\u0161u \u0101rst\u0113\u0161anu, ir \u013coti svar\u012bgi inform\u0113t \u0101rstu par vis\u0101m z\u0101l\u0113m, ko lietojat, jo da\u017eas z\u0101les var ietekm\u0113t VS \u0101rst\u0113\u0161anas l\u012bdzek\u013cu efektivit\u0101ti un dro\u0161umu. Lai noskaidrotu, k\u0101da \u0101rst\u0113\u0161ana jums ir vispiem\u0113rot\u0101k\u0101, m\u0113s iesak\u0101m konsult\u0113ties ar centru,<\/a> kas specializ\u0113jas asinsreces slim\u012bbu \u0101rst\u0113\u0161an\u0101.1<\/sup>

Liel\u0101kai da\u013cai pacientu pirm\u0101s izv\u0113les \u0101rst\u0113\u0161anas l\u012bdzeklis ir desmopres\u012bns<\/b>. Desmopres\u012bns stimul\u0113 uzkr\u0101to asinsreces faktoru atbr\u012bvo\u0161anu un bie\u017ei tiek izmantots 1. tipa un da\u017eu 2. tipa VS pacientu \u0101rst\u0113\u0161anai, bet ne 3. tipa VS pacientu \u0101rst\u0113\u0161anai. Tas paaugstina VWF l\u012bmeni, lai uzlabotu asinsreci. Desmopres\u012bnu bie\u017ei lieto, lai kontrol\u0113tu asi\u0146o\u0161anu nelielas oper\u0101cijas laik\u0101<\/a> vai p\u0113c traumas, bet tas nav piem\u0113rots visiem pacientiem vai pla\u0161as oper\u0101cijas laik\u0101.1<\/sup>

Aizst\u0101jterapiju ar VWF saturo\u0161iem koncentr\u0101tiem <\/b> izmanto, kad desmopres\u012bns nav efekt\u012bvs vai nav indic\u0113ts. \u0160ie koncentr\u0101ti aizst\u0101j VWF, kas tr\u016bkst j\u016bsu asin\u012bs vai nedarbojas pilnv\u0113rt\u012bgi, lai pal\u012bdz\u0113tu kontrol\u0113t asi\u0146o\u0161anu. Cilv\u0113ki ar noteiktu tipu VS vai cilv\u0113ki ar smagiem asi\u0146o\u0161anas simptomiem visbie\u017e\u0101k lieto VWF saturo\u0161us koncentr\u0101tus. Ja jums ir smagas vai bie\u017eas asi\u0146o\u0161anas epizodes, jums var b\u016bt lietder\u012bga ar\u012b regul\u0101ra profilaktiska \u0101rst\u0113\u0161ana ar VWF saturo\u0161iem koncentr\u0101tiem, lai nov\u0113rstu asi\u0146o\u0161anu.1<\/sup>

Da\u017eos gad\u012bjumos, jo \u012bpa\u0161i pacientiem ar 1. tipa VS, bie\u017ei lieto antifibrinol\u012btiskos l\u012bdzek\u013cus<\/b>, piem\u0113ram, traneksam\u012bnsk\u0101bi. \u0160\u012bs z\u0101les pal\u0113nina asins recek\u013cu sadal\u012b\u0161anos un tiek ieteiktas neliel\u0101m oper\u0101cij\u0101m, zob\u0101rstniec\u012bbas proced\u016br\u0101m, k\u0101 ar\u012b smagu menstru\u0101ciju un p\u0113cdzemd\u012bbu asi\u0146o\u0161anas \u0101rst\u0113\u0161anai. Ar\u012b fibr\u012bna l\u012bme var b\u016bt noder\u012bga asi\u0146o\u0161anas vietas nosl\u0113g\u0161anai, piem\u0113ram, p\u0113c zoba izrau\u0161anas. Ja iesp\u0113jams, visu \u0161o z\u0101\u013cu lieto\u0161ana j\u0101pl\u0101no iepriek\u0161 un j\u0101iek\u013cauj individu\u0101li piel\u0101got\u0101 \u0101rst\u0113\u0161anas pl\u0101n\u0101.1<\/sup>

Sieviet\u0113m ar VS bie\u017ei nov\u0113ro stipru menstru\u0101lo asi\u0146o\u0161anu<\/a> (SMA) un asi\u0146o\u0161anu gr\u016btniec\u012bbas un dzemd\u012bbu laik\u0101.<\/a> SMA \u0101rst\u0113\u0161anas iesp\u0113jas ietver hormon\u0101lo terapiju, piem\u0113ram, intrauter\u012bno ier\u012bci, kas da\u017ek\u0101rt var samazin\u0101t menstru\u0101lo asi\u0146o\u0161anu. Ja pl\u0101nojat \u0123imeni vai esat gr\u016btniece, iesak\u0101m p\u0113c iesp\u0113jas \u0101tr\u0101k konsult\u0113ties ar \u0101rstu. Gr\u016btniec\u0113m ar VS ir pieejami vair\u0101ki \u0101rst\u0113\u0161anas l\u012bdzek\u013ci. J\u016bsu \u0101rsts kop\u0101 ar jums izstr\u0101d\u0101s \u0101rst\u0113\u0161anas pl\u0101nu, lai nodro\u0161in\u0101tu dro\u0161u un vesel\u012bgu gr\u016btniec\u012bbu un dzemd\u012bbas.1<\/sup>

VS var ietekm\u0113t ar\u012b psihisko vesel\u012bbu<\/a>, soci\u0101l\u0101s attiec\u012bbas un dz\u012bves kvalit\u0101ti gan b\u0113rniem, gan pieaugu\u0161ajiem. 2-5 <\/sup>T\u0101di simptomi k\u0101 SMA vai loc\u012btavu asi\u0146o\u0161ana bie\u017ei ir saist\u012bti ar depresijas un trauksmes paz\u012bm\u0113m. 2<\/sup> Vec\u0101ki bie\u017ei uztraucas par asi\u0146o\u0161anu, kas var rasties vi\u0146u b\u0113rniem, un b\u0113rni ar VS \u0161\u012bs slim\u012bbas d\u0113\u013c var saskarties ar probl\u0113m\u0101m skol\u0101 vai rota\u013c\u0101joties ar draugiem.5<\/sup> Lai p\u0101rvar\u0113tu \u0161os izaicin\u0101jumus, ir svar\u012bgi, lai jums b\u016btu sp\u0113c\u012bgs soci\u0101lais t\u012bkls un j\u016bs sa\u0146emtu pareizu \u0101rst\u0113\u0161anu un inform\u0101ciju no \u0101rstiem j\u016bsu \u0101rst\u0113\u0161anas centr\u0101.2,3<\/sup><\/p>\n<\/div>\n\n\r\n\r\n\r\n\r\n

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\u0136irur\u0123ija
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Cilv\u0113kiem ar Villebranda slim\u012bbu (<\/strong>VS<\/strong><\/a>) ir liel\u0101ka varb\u016bt\u012bba piedz\u012bvot p\u0101rm\u0113r\u012bgu <\/strong>asi\u0146o\u0161anu oper\u0101cijas laik\u0101 un p\u0113c t\u0101s<\/strong><\/a>.1<\/sup>\u00a0 Pat pacienti ar sal\u012bdzino\u0161i viegl\u0101m VS form\u0101m zi\u0146o par stipru p\u0113coper\u0101cijas asi\u0146o\u0161anu, kas var ilgt ilgu laiku vai atk\u0101rtoties.1<\/sup> Asi\u0146o\u0161anas risks nav saist\u012bts tikai ar liel\u0101m oper\u0101cij\u0101m, asi\u0146o\u0161ana var rasties ar\u012b p\u0113c neliel\u0101m \u0137irur\u0123isk\u0101m proced\u016br\u0101m, piem\u0113ram, zoba izrau\u0161anas.2<\/sup> Tom\u0113r, ja pareiz\u0101 laik\u0101 tiek veikta pareiza \u0101rst\u0113\u0161ana, p\u0101rm\u0113r\u012bgas asi\u0146o\u0161anas risku var samazin\u0101t gan oper\u0101cijas laik\u0101, gan p\u0113c t\u0101s. 3,4<\/sup><\/strong><\/p>\n

Ja jums ir VS un j\u016bs pl\u0101nojat oper\u0101ciju, ir \u013coti svar\u012bgi, lai j\u016bs pirms oper\u0101cijas par savu slim\u012bbu run\u0101tu ar savu zob\u0101rstu vai \u0137irurgu. Tad \u0101rsts izstr\u0101d\u0101s \u0101rst\u0113\u0161anas pl\u0101nu saist\u012bb\u0101 ar oper\u0101ciju. Pl\u0101ns j\u0101izstr\u0101d\u0101, pamatojoties uz prec\u012bzu VS apak\u0161tipa un smaguma pak\u0101pes diagnozi, k\u0101 ar\u012b uz j\u016bsu asi\u0146o\u0161anas v\u0113sturi. \u0160\u012b inform\u0101cija \u013caus \u0101rstam izprast j\u016bsu asi\u0146o\u0161anas risku oper\u0101cijas laik\u0101 un p\u0113c t\u0101s. Pl\u0101n\u0101 j\u0101\u0146em v\u0113r\u0101 ar\u012b veicam\u0101s oper\u0101cijas veids, k\u0101 ar\u012b citas slim\u012bbas un lietot\u0101s z\u0101les. Kopum\u0101 \u0161\u012b inform\u0101cija ir b\u016btiska, lai vad\u012btu \u0101rst\u0113\u0161anu pirms oper\u0101cijas, t\u0101s laik\u0101 un p\u0113c t\u0101s.1,2,4<\/sup><\/p>\n

Lai samazin\u0101tu asi\u0146o\u0161anas risku oper\u0101cijas laik\u0101, eksperti ir izstr\u0101d\u0101ju\u0161i \u0101rst\u0113\u0161anas vadl\u012bnijas gan neliel\u0101m, gan pla\u0161\u0101m oper\u0101cij\u0101m cilv\u0113kiem ar VS. Atkar\u012bb\u0101 no VS tipa un oper\u0101cijas veida \u0161aj\u0101s vadl\u012bnij\u0101s ir aprakst\u012bts, k\u0101da \u0101rst\u0113\u0161ana jums j\u0101sa\u0146em, lai atjaunotu asins rec\u0113\u0161anu, un cik ilgi t\u0101 j\u0101turpina.3<\/sup> Neliel\u0101m oper\u0101cij\u0101m, piem\u0113ram, vienk\u0101r\u0161ai zoba izrau\u0161anai, \u0101rst\u0113\u0161ana var b\u016bt nepiecie\u0161ama l\u012bdz 5 dien\u0101m.4<\/sup> Pla\u0161u oper\u0101ciju, piem\u0113ram, sirds oper\u0101ciju, histerektomijas vai loc\u012btavu protez\u0113\u0161anas, gad\u012bjum\u0101 \u0101rst\u0113\u0161ana j\u0101veic pirms oper\u0101cijas, l\u012bdz atjaunojas asinsrece, un vismaz 3 dienas p\u0113c oper\u0101cijas, l\u012bdz samazin\u0101s asi\u0146o\u0161anas risks.3<\/sup> Da\u017eiem oper\u0101ciju veidiem, piem\u0113ram, ce\u013ca loc\u012btavas protez\u0113\u0161anai pieaugu\u0161ajiem vai mande\u013cu iz\u0146em\u0161anai b\u0113rniem, asi\u0146o\u0161anas riska samazin\u0101jums var tikt pan\u0101kts p\u0113c 2 ned\u0113\u013c\u0101m, un \u0101rst\u0113\u0161anas pl\u0101ns atbilsto\u0161i j\u0101piel\u0101go.4,5<\/sup><\/p>\n

Visbeidzot, ja jums ir nepiecie\u0161ama injekcija, jums vajadz\u0113tu par VS run\u0101t ar\u012b ar savu medm\u0101su vai \u0101rstu. Injekcijas ievad\u012b\u0161ana tie\u0161i zem \u0101das var pal\u012bdz\u0113t izvair\u012bties no s\u0101p\u012bgas asi\u0146o\u0161anas muskul\u012b, piem\u0113ram, p\u0113c vakcin\u0101cijas.2<\/sup><\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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Atsauces<\/h5>\r\n\t\t\t\t\t\t\t

1. Corrales-Medina FF et al. Blood Rev<\/em> 2022; 101018.
\n2. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/<\/a>; last accessed March 2023.
\n3. Connell NT et al. Blood Advances<\/em> 2021; 5:301-25.
\n4. O\u2019Donnell JS & Lavin M, Hematology<\/em> Am Soc Hematol Educ Program<\/em> 2019; 604\u2013609.
\n5. Patel PN et al. Int J Pediatr Otorhinolaryngol<\/em> 2017; 100:216-222.<\/p>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n

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Gr\u016btniec\u012bba un dzemd\u012bbas
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J\u016bs varat pl\u0101not \u0123imeni, ja jums ir <\/strong>Villebranda slim\u012bba<\/strong><\/a> (VS). Ar atbilsto\u0161u medic\u012bnisko apr\u016bpi j\u016bsu gr\u016btniec\u012bba b\u016bs veiksm\u012bga, bet b\u0113rns \u2013 vesels. Lai nodro\u0161in\u0101tu savu un b\u0113rna dro\u0161\u012bbu, ja pl\u0101nojat gr\u016btniec\u012bbu vai jau esat gr\u016btniece, jums j\u0101konsult\u0113jas ar \u0101rstu. \u0100rsts ar jums p\u0101rrun\u0101s risku saist\u012bb\u0101 ar gr\u016btniec\u012bbu, prenat\u0101lo test\u0113\u0161anu un dzemd\u012bb\u0101m, k\u0101 ar\u012b iesp\u0113ju, ka j\u016bsu b\u0113rnam var\u0113tu b\u016bt VS. J\u016bs varat ar\u012b apspriest iepriek\u0161\u0113j\u0101s gr\u016btniec\u012bbas, savu un savas \u0123imenes asi\u0146o\u0161anas v\u0113sturi vai spont\u0101nos abortus, kas jums var\u0113tu b\u016bt biju\u0161i. Pamatojoties uz j\u016bsu individu\u0101lo asi\u0146o\u0161anas risku, \u0101rsts izstr\u0101d\u0101s pl\u0101nu dro\u0161ai gr\u016btniec\u012bbai un dzemd\u012bb\u0101m.1-3<\/sup><\/strong><\/p>\n

\u0160\u0101da pl\u0101no\u0161ana ir nepiecie\u0161ama sieviet\u0113m ar VS, lai l\u012bdz minimumam samazin\u0101tu jebk\u0101dus potenci\u0101los riskus, kas var rasties dzemd\u012bbu laik\u0101 un p\u0113c t\u0101m. Vesel\u0101m sieviet\u0113m gr\u016btniec\u012bbas laik\u0101 paaugstin\u0101s asins prote\u012bnu, ko sauc par asinsreces faktoriem, l\u012bmenis, lai aizsarg\u0101tu topo\u0161o m\u0101ti no p\u0101rm\u0113r\u012bgas asi\u0146o\u0161anas dzemd\u012bbu laik\u0101 un p\u0113c t\u0101m. Sal\u012bdzinot ar sieviet\u0113m, kur\u0101m nav \u0161\u012bs slim\u012bbas, sieviet\u0113m ar VS gr\u016btniec\u012bbas laik\u0101 bie\u017ei ir zem\u0101ks asinsreces faktoru l\u012bmenis. T\u0101 k\u0101 asinsreces faktoru l\u012bmenis ir main\u0101s, gr\u016btniec\u0113m ar VS asinis ir regul\u0101ri j\u0101kontrol\u0113, \u012bpa\u0161i tre\u0161aj\u0101 trimestr\u012b. Ja funkcion\u0101lo asinsreces faktoru l\u012bmenis ir p\u0101r\u0101k zems, profilaktiska \u0101rst\u0113\u0161ana j\u0101veic dzemd\u012bbu laik\u0101 un p\u0113c t\u0101m. Lai v\u0113l vair\u0101k samazin\u0101tu asi\u0146o\u0161anas risku dzemd\u012bbu laik\u0101 un p\u0113c t\u0101m, \u0101rsts var nolemt sadarboties ar hematologiem vai ieteikt dzemd\u0113t specializ\u0113t\u0101 slimn\u012bc\u0101.1-3 <\/sup><\/p>\n

Iesp\u0113jams, ka ar\u012b j\u016bsu nedzimu\u0161ajam b\u0113rnam b\u016bs VS. Lai gan liel\u0101kajai da\u013cai b\u0113rnu ar VS dzemd\u012bbu laik\u0101 nav ar asi\u0146o\u0161anu saist\u012btu probl\u0113mu, ir svar\u012bgi apzin\u0101ties \u0161o iesp\u0113ju, lai var\u0113tu veikt nepiecie\u0161amos piesardz\u012bbas pas\u0101kumus. T\u0101p\u0113c \u0123imenes, kur\u0101s vienam no vec\u0101kiem ir smaga VS, ir j\u0101konsult\u0113 ne tikai par b\u0113rna ar VS piedzim\u0161anu, bet ar\u012b par ietekmi uz gr\u016btniec\u012bbu un dzemd\u012bbu veidu.1-3 <\/sup><\/p>\n

Svar\u012bgi, ka visus \u0161os riskus var efekt\u012bvi p\u0101rvald\u012bt, veicot atbilsto\u0161u uzraudz\u012bbu un izstr\u0101d\u0101jot apr\u016bpes pl\u0101nu pirms dzemd\u012bb\u0101m, to laik\u0101 un p\u0113c t\u0101m gan jums, gan j\u016bsu mazulim.3,4 <\/sup><\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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    \n
  1. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/;<\/a> last accessed Feb 2023.<\/li>\n
  2. https:\/\/www.cdc.gov\/ncbddd\/vwd\/women.html;<\/a> last accessed Feb 2023.<\/li>\n
  3. Leebeek FWG, et al. Blood 2020; 136:2143-50.<\/li>\n
  4. Janbain M and Kouides P Int J Womens Health 2022; 14:1307-13.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n
    \r\n\t

    Psihisk\u0101 vesel\u012bba
    <\/div><\/h4><\/div>\r\n\t
    \r\n\t\t\t\t\t\t\t\t\t\t
    \r\n\t\t\t\t\t

    Asinsreces slim\u012bba var b\u016btiski ietekm\u0113t dz\u012bvi. Asi\u0146o\u0161anas risks var ietekm\u0113t j\u016bsu fizisko vesel\u012bbu, emocion\u0101lo un psihisko st\u0101vokli, uzved\u012bbu, attiec\u012bbas ar \u0123imeni un soci\u0101lo dz\u012bvi.1 Simptomi var ierobe\u017eot j\u016bsu ikdienas aktivit\u0101tes, rad\u012bt ba\u017eas par n\u0101kotni un izrais\u012bt nedro\u0161\u012bbu par int\u012bm\u0101m attiec\u012bb\u0101m. Bie\u017ei vien \u0161ie ierobe\u017eojumi un ba\u017eas ietekm\u0113 ar\u012b \u0123imenes locek\u013cus. Ietekme uz dz\u012bves kvalit\u0101ti var b\u016bt v\u0113l izteikt\u0101ka, ja asinsreces slim\u012bba nav diagnostic\u0113ta, k\u0101 tas diem\u017e\u0113l bie\u017ei notiek <\/strong>Villebranda slim\u012bbas<\/strong><\/a> (VS) gad\u012bjum\u0101.1-3<\/sup> Cilv\u0113kiem ar nediagnostic\u0113tu VS nav pieejama atbilsto\u0161a \u0101rst\u0113\u0161ana un atbalsts. Bez soci\u0101l\u0101 atbalsta pacientiem ar VS bie\u017ei nov\u0113ro trauksmes un depresijas paz\u012bmes.2,3<\/sup> Pat p\u0113c diagnozes noteik\u0161anas ir svar\u012bgi apzin\u0101ties, ka VS ir slim\u012bba uz m\u016b\u017eu, kas rada past\u0101v\u012bgas gr\u016bt\u012bbas pacientiem, vi\u0146u \u0123imen\u0113m un apk\u0101rt\u0113jiem.<\/strong><\/p>\n

    Pacientiem ar VS vec\u0101ku loma rada unik\u0101las gr\u016bt\u012bbas. VS un citas asinsreces slim\u012bbas ir iedzimtas slim\u012bbas, un \u0161\u012b diagnoze var b\u016btiski ietekm\u0113t \u0123imenes pl\u0101no\u0161anu. J\u016bs k\u0101 b\u0113rna, kam ir asinsreces slim\u012bba, vec\u0101ki, varat justies vain\u012bgi un vainot sevi par sava b\u0113rna slim\u012bbu. Turkl\u0101t bailes no asi\u0146o\u0161anas var likt jums p\u0101r\u0101k aizsarg\u0101t savu b\u0113rnu un ierobe\u017eot vi\u0146a soci\u0101l\u0101s vai sporta aktivit\u0101tes. Tom\u0113r jebk\u0101di aizsardz\u012bbas pas\u0101kumi ir j\u0101sam\u0113ro ar b\u0113rna br\u012bv\u012bbu izzin\u0101t un veidot pa\u0161apzi\u0146u, kas ir svar\u012bgi j\u016bsu b\u0113rna att\u012bst\u012bbai. Vienk\u0101r\u0161u aizsardz\u012bbas pas\u0101kumu kombin\u0101cija, atbilsto\u0161u aktivit\u0101\u0161u izv\u0113le un viegla piek\u013cuve efekt\u012bvai \u0101rst\u0113\u0161anai var pal\u012bdz\u0113t jums atrast \u0161o l\u012bdzsvaru.2,4<\/sup><\/p>\n

    Pusaud\u017ea gadi var b\u016bt \u012bpa\u0161i gr\u016bts periods cilv\u0113kiem ar VS. Uz\u0146emoties liel\u0101ku atbild\u012bbu par savas asinsreces slim\u012bbas \u0101rst\u0113\u0161anu, ir \u013coti svar\u012bgi iev\u0113rot \u0101rst\u0113\u0161anas<\/a> nor\u0101d\u012bjumus. Ja pats kontrol\u0113siet savu slim\u012bbu, j\u016bs ne tikai samazin\u0101siet asi\u0146o\u0161anas un s\u0101pju risku, bet ar\u012b ieg\u016bsiet p\u0101rliec\u012bbu par sav\u0101m sp\u0113j\u0101m un pal\u012bdz\u0113siet saglab\u0101t labu psihisko vesel\u012bbu un pilnv\u0113rt\u012bgu soci\u0101lo dz\u012bvi.2,6<\/sup><\/p>\n

    Bie\u017ei slim\u012bba b\u016btiski ietekm\u0113 sievie\u0161u ar asinsreces trauc\u0113jumiem psihisko vesel\u012bbu un dz\u012bves kvalit\u0101ti. Ja jums ir VS, ir \u013coti liela varb\u016bt\u012bba, ka jums b\u016bs ar\u012b stipra menstru\u0101l\u0101 asi\u0146o\u0161ana<\/a> (SMA). Asins zudums un spazmas var b\u016btiski trauc\u0113t ikdienas dz\u012bvi, sporto\u0161anu un citas fiziskas aktivit\u0101tes, k\u0101 ar\u012b soci\u0101l\u0101s un romantisk\u0101s attiec\u012bbas. SMA bie\u017ei izraisa ar\u012b skolas vai darba kav\u0113jumus. Diem\u017e\u0113l SMA gad\u012bjum\u0101 bie\u017ei sastopams noraid\u012bjums un stigmatiz\u0101cija. \u0160o aktivit\u0101\u0161u un mijiedarb\u012bbas ierobe\u017eojumu un atz\u012b\u0161anas tr\u016bkuma d\u0113\u013c sieviet\u0113m ar VS bie\u017ei ir slikta psihisk\u0101 vesel\u012bba, vi\u0146as j\u016btas vientu\u013cas, nesp\u0113j\u012bgas neko sasniegt un nom\u0101ktas. Svar\u012bgi, ka SMA ir \u0101rst\u0113jama, un \u0101rst\u0113\u0161ana var uzlabot dz\u012bves kvalit\u0101ti sieviet\u0113m ar VS un SMA.4,5<\/sup><\/p>\n

    Viens no galvenajiem faktoriem, kas pal\u012bdz ierobe\u017eot asinsreces slim\u012bbas psiholo\u0123isko un soci\u0101lo ietekmi, ir sp\u0113c\u012bgs atbalsta t\u012bkls. Tas var ietvert j\u016bsu \u0123imeni un draugus, k\u0101 ar\u012b soci\u0101los dienestus un vesel\u012bbas apr\u016bpes sniedz\u0113jus.3<\/sup> Ja j\u016btaties nom\u0101kts, satraukts vai depres\u012bvs, par sav\u0101m saj\u016bt\u0101m run\u0101jiet ar\u012b ar savu \u0101rstu vai \u0101rst\u0113\u0161anas centra speci\u0101listu. Vi\u0146i sp\u0113s jums pal\u012bdz\u0113t un nor\u0101d\u012bt daudzus noder\u012bgus resursus, ko eksperti ir izstr\u0101d\u0101ju\u0161i, lai aizsarg\u0101tu vesel\u012bbu cilv\u0113kiem, kuriem ir asinsreces trauc\u0113jumi. \u0100rst\u0113\u0161anas centra person\u0101ls var pal\u012bdz\u0113t jums atrast psihologus un konsultantus, kuriem ir pieredze darb\u0101 ar cilv\u0113kiem, kam ir asinsreces trauc\u0113jumi. M\u0113s ar\u012b stingri iesak\u0101m sazin\u0101ties ar viet\u0113jo pacientu grupu. Tur j\u016bs varat p\u0101rrun\u0101t savu pieredzi, emocijas un gaidas saist\u012bb\u0101 ar VS un sa\u0146emt praktiskus padomus no citiem pacientiem. VS ir reta slim\u012bba, bet j\u016bs neesat viens, un pal\u012bdz\u012bba ir pieejama.<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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    Atsauces<\/h5>\r\n\t\t\t\t\t\t\t
      \n
    1. van Hoorn ES, et al. Haemophilia 2022; 28:197-214.<\/li>\n
    2. https:\/\/www.hemophilia.org\/sites\/default\/files\/document\/files\/nurses-guide-chapter-13a-child-development-with-bleeding-disorder-transition.pdf<\/a>; last accessed Mar 2023.<\/li>\n
    3. Roberts JC, et al. Haemophilia 2022; doi: 10.1111\/hae.14725.<\/li>\n
    4. VanderMeulen H, et al. Hematology Am Soc Hematol Educ Program 2022 1: 631-6.<\/li>\n
    5. Sanigorska A, et al. Res Pract Thromb Haemost 2022; 6:e12652.<\/li>\n
    6. McLaughlin JM, et al. Health and Quality of Life Outcomes, 2017: 15:67.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n
      \n
      Atsauces<\/h6>\n<\/div>\n\n
      \n
        \n
      1. Connell NT et al. Blood Advances<\/em> 2021; 5:301-25.<\/li>\n<\/div>\n\n
        \n
      2. Roberts JC et al. Haemophilia<\/em> 2022; doi:10.1111\/hae.14725.<\/li>\n<\/div>\n\n
        \n
      3. Rae C et al. Haemophilia 2013; 19:385-91.<\/li>\n<\/div>\n\n
        \n
      4. De Wee et al. J Thromb Haemost<\/em> 2010; 8:1492-9.<\/li>\n<\/div>\n\n
        \n
      5. De Wee et al. J Thromb Haemost<\/em> 2011; 9:502-9.<\/li>\n<\/div><\/ol>\n<\/div>","protected":false},"excerpt":{"rendered":"

        K\u0101das ir Villebranda slim\u012bbas \u0101rst\u0113\u0161anas iesp\u0113jas? K\u0101 vec\u0101kiem vislab\u0101k r\u016bp\u0113ties par b\u0113rnu, kam ir VS? K\u0101 atrast man piem\u0113rot\u0101ko \u0101rst\u0113\u0161anas metodi? K\u0101da noz\u012bme ir VS, pl\u0101nojot \u0123imeni? VS ietekm\u0113 manu soci\u0101lo un \u0123imenes dz\u012bvi: ko es varu dar\u012bt? Dz\u012bve ar Villebranda slim\u012bbu (VS) ir ce\u013cojums, bet j\u016bs neesat viens. Neatkar\u012bgi no t\u0101, vai VS jums […]<\/p>\n","protected":false},"author":1,"featured_media":1663,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false},"acf":[],"yoast_head":"\nEs sadz\u012bvoju ar VS - Latvia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Es sadz\u012bvoju ar VS - Latvia\" \/>\n<meta property=\"og:description\" content=\"K\u0101das ir Villebranda slim\u012bbas \u0101rst\u0113\u0161anas iesp\u0113jas? K\u0101 vec\u0101kiem vislab\u0101k r\u016bp\u0113ties par b\u0113rnu, kam ir VS? K\u0101 atrast man piem\u0113rot\u0101ko \u0101rst\u0113\u0161anas metodi? K\u0101da noz\u012bme ir VS, pl\u0101nojot \u0123imeni? VS ietekm\u0113 manu soci\u0101lo un \u0123imenes dz\u012bvi: ko es varu dar\u012bt? Dz\u012bve ar Villebranda slim\u012bbu (VS) ir ce\u013cojums, bet j\u016bs neesat viens. 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K\u0101 vec\u0101kiem vislab\u0101k r\u016bp\u0113ties par b\u0113rnu, kam ir VS? K\u0101 atrast man piem\u0113rot\u0101ko \u0101rst\u0113\u0161anas metodi? K\u0101da noz\u012bme ir VS, pl\u0101nojot \u0123imeni? VS ietekm\u0113 manu soci\u0101lo un \u0123imenes dz\u012bvi: ko es varu dar\u012bt? Dz\u012bve ar Villebranda slim\u012bbu (VS) ir ce\u013cojums, bet j\u016bs neesat viens. Neatkar\u012bgi no t\u0101, vai VS jums […]","og_url":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/","og_site_name":"Latvia","article_modified_time":"2026-04-09T06:51:53+00:00","og_image":[{"width":560,"height":889,"url":"https:\/\/vwdtest.com\/lv\/wp-content\/uploads\/sites\/76\/2023\/09\/Living-with-VWD.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/","url":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/","name":"Es sadz\u012bvoju ar VS - Latvia","isPartOf":{"@id":"https:\/\/vwdtest.com\/lv\/#website"},"datePublished":"2023-04-28T14:26:00+00:00","dateModified":"2026-04-09T06:51:53+00:00","breadcrumb":{"@id":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/vwdtest.com\/lv\/i-live-with-vwd\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/vwdtest.com\/lv\/"},{"@type":"ListItem","position":2,"name":"Es sadz\u012bvoju ar VS"}]},{"@type":"WebSite","@id":"https:\/\/vwdtest.com\/lv\/#website","url":"https:\/\/vwdtest.com\/lv\/","name":"Latvia","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/vwdtest.com\/lv\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"}]}},"_links":{"self":[{"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/pages\/829"}],"collection":[{"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/comments?post=829"}],"version-history":[{"count":149,"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/pages\/829\/revisions"}],"predecessor-version":[{"id":3367,"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/pages\/829\/revisions\/3367"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/media\/1663"}],"wp:attachment":[{"href":"https:\/\/vwdtest.com\/lv\/wp-json\/wp\/v2\/media?parent=829"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}