Asiņošanas novērtējums

Laipni aicinām izmantot mūsu asiņošanas novērtēšanas rīku

Ne vienmēr ir viegli noteikt, vai asiņošana ir pārāk stipra. Šis tests ir izstrādāts, lai palīdzētu jums un jūsu ārstam noskaidrot, vai jūsu asiņošana ir normāla.

Anketa ir balstīta uz zinātniski apstiprinātu instrumentu, ko pielāgojuši profesors Koraless (Corrales) un profesors Ēriks Berntorps (Erik Berntorp)1,2.

ATRUNA

LŪGUMS ŅEMT VĒRĀ: Šī anketa ir balstīta uz zinātniski apstiprinātu instrumentu, ko pielāgojuši profesors Koraless un profesors Ēriks Berntorps 1,2. To var izmantot, lai noteiktu, vai ir iespējami asinsreces traucējumi. Tā ir paredzēts tikai informatīvām vajadzībām un lai atbalstītu sarunu ar kvalificētu, licencētu veselības aprūpes speciālistu. Tā nekādā gadījumā nav domāta kā profesionāla medicīniskā padoma un vērtējuma aizstājējs. Ja jums ir jautājumi vai bažas par šī testa rezultātiem, konsultējieties ar savu ārstu vai veselības aprūpes speciālistu.

PERSONAS DATI: Pirms šī testa veikšanas vēlamies jums sniegt šādu informāciju par jūsu privātumu:

  • Atbildes, ko sniedzat šajā testā, tiek izmantotas, lai noteiktu Villebranda slimības (VS) riska pakāpi.
  • Datus, kurus ievadīsiet šajā veidlapā, uzņēmums Octapharma AG uzglabās un izmantos arī statistikas vajadzībām, kas saistītas vienīgi ar VS izplatību, un šī izmantošana attieksies tikai uz datiem, kas ir atbilstoši un piemēroti šim nolūkam.
  • Jums nekad netiks lūgts sniegt datus, kas ļautu identificēt jūsu personu.
  • Lietotāja identifikācijas numurs, ko ievada “atkārtota apmeklējuma” gadījumā, tikai ļauj otro novērtējumu tieši saistīt ar iepriekš veikto pirmo novērtējumu. Otrā novērtējuma veidlapas struktūra ir identiska pirmajam novērtējumam. Lietotājs nekādā gadījumā netiks identificēts personīgi.

Lai iegūtu vairāk informācijas, lūdzu, izlasiet datu privātuma politiku.

1. A quantitative analysis of bleeding symptoms in type 1 von Willebrand disease: results from a multicenter European study (MCMDM-1 VWD). Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, et al. J Thromb Haemost. 2006; 4: 766-73. 2. A need to increase von Willebrand disease awareness: vwdtest.com/lv - A global initiative to help address this gap. Corrales-Medina FF, Federici AB, Srivastava A, Dougall A, Millar CM, et al. Blood Rev. 2023; 58: 101018.

Dzimums *
Jūsu vecums *
Valsts/reģions *
Reģions *
Asinsreces traucējumi ģimenes anamnēzē *

Vai kādam no jūsu tuvākajiem ģimenes locekļiem* ir diagnosticēti asinsreces traucējumi?

*Vecākiem, māsām, brāļiem vai bērniem

Solis {{questionIndex+1}}/{{questions.length}}

Jūsu asiņošanas rādītājs ir patoloģisks

Tas liecina, ka jums varētu būt asinsreces traucējumi.

Jusu rezultāts

{{nbPointsAnswers}}

Normāls diapazons: 0-3

Paldies, ka veicāt testu. Iesakām lejupielādēt rezultātu veidlapu un pārrunāt rezultātus ar ārstu. Ir liela iespēja, ka jūsu asiņošana ir kontrolējama, un ārsts palīdzēs atrast jums piemērotu ārstēšanu.

Vai domājat, ka arī citiem ģimenes locekļiem ir pārāk stipra asiņošana? Lūdziet, lai viņi veic testu

Noderīgi resursi
Lejuplādējiet rezultātus

Jūsu asiņošanas rādītājs ir normāls

Ja jums turpmāk ir stiprāka asiņošana, atkārtojiet testu. Ja neesat pārliecināts par asiņošanu, konsultējieties ar ārstu.

Jusu rezultāts

{{nbPointsAnswers}}

Normāls diapazons: 0-3

Šis tests liecina, ka jums nav asinsreces traucējumu, taču tas neaizstāj pilnīgu izvērtējumu, ko veic apmācīts veselības aprūpes speciālists.

User ID: {{assessmentId}}

Your bleeding score indicates that you may have a bleeding disorder. However, this test is not a replacement for a complete assessment by a trained healthcare professional, and further information would be needed to make a proper diagnosis.

Please follow the steps below to ensure a full diagnosis.

Centers recommended for following up on the results with a von Willebrand specialist near your current location.

This letter is addressed to Health Care Professionals 999

Dear Colleagues,

My name is Erik Berntorp and I am a Professor in Haematology and Coagulation Disorders at Lund University in Sweden. As you may be aware, von Willebrand disease (VWD) is the most common bleeding disorder (affecting up to 1% of the world’s population) yet is still highly underdiagnosed. Together with other colleagues we have developed the VWDtest.com online platform, with the aim of improving the diagnosis of VWD. At the VWDtest.com website, users can complete a simple five-minute questionnaire to evaluate whether they may have a bleeding disorder or not.

In this case, the questionnaire has indicated that the user may have a bleeding disorder. We are here to help you identifying whether this person is affected by VWD. The support we provide includes advice on VWD diagnosis from world-leading experts as well as blood and plasma sample analysis in state of the art laboratories. These services are free of charge if the procedures below are strictly followed.

I hope you will benefit from the support of the VWDtest.com team and help us facilitating accurate VWD diagnosis.

How to proceed

- Following an abnormal bleeding test score, the individual has been asked to repeat the online bleeding questionnaire with their General Practitioner/Primary Care physician (GP/PCP). If this is you, please jump to the section “For GP/PCP” below.

- If the bleeding test results were similar when the test was repeated, the GP/PCP has been asked to refer the patient to a haematologist. If this is you, please jump to the section “For the haematologist” below.

For the GP/PCP

Please repeat the bleeding questionnaire together with your patient using the user ID (on the top right on the bleeding questionnaire results). Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

In case the bleeding score of your patient is 4 or above, please refer them to a haematologist. Please ensure that the haematologist is provided with the bleeding questionnaire results and informed about the purpose of this investigation.

In case the score is 3 or below, the patient does not need further investigation.

For the haematologist

Before contacting the VWD expert team, please execute the following blood tests:

  • Complete blood count
  • Activated partial thromboplastin time (APTT)
  • Prothrombin time (PT)
  • Fibrinogen
  • Platelet function assay (PFA)

Abnormalities in the above mentioned laboratory tests, together with a clinical anamnestic patient data could give a sign for VWD. You have the possibility to contact and discuss your patient condition with our VWD expert team.

After having performed these blood tests, please contact the VWD expert team:

If you have any clinical questions about VWD, please send an email to Dr. Fernando Corrales (ffc5@med.miami.edu) if you are located in the continent of America and to Prof. Erik Berntorp (erik.berntorp@med.lu.se) if you are located anywhere else in the world stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

For a free sample analysis service (this service is not available in the United States) helping you to diagnose VWD, please send an email to Dr. Anna Pavlova (Anna.Pavlova@ukbonn.de) stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Again, please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

Your email will be processed by the respective VWD expert, who will reply to you shortly. If you and the VWD expert team decide that further diagnostic tests are necessary, you may be asked to submit blood and plasma samples from your patient for analysis (detailed information on how to submit the samples will be provided to you). The submitted samples will undergo several tests, which may include: von Willebrand factor (VWF) antigen and activity levels, FVIII activity, VWF multimer analysis, and FVIII-binding assays. These tests will confirm or exclude whether the patient has VWD. In addition, if a VWD diagnosis is made, next-generation sequencing will be carried out to look for possible causative variations in the VWF gene.

This sample analysis service is free of charge, but only available upon explicit written request by a member of the VWD expert team. Any unsolicited sample submissions will be disregarded.

Support and advice on diagnosis and management options will continue to be available from the VWD expert team, free of charge, after the sample analysis results have been provided.

Yours sincerely,

Professor Erik Berntorp