{"id":829,"date":"2023-04-28T14:26:00","date_gmt":"2023-04-28T14:26:00","guid":{"rendered":"https:\/\/new.vwdtest.com\/hu\/?page_id=829"},"modified":"2026-01-19T14:22:59","modified_gmt":"2026-01-19T14:22:59","slug":"i-live-with-vwd","status":"publish","type":"page","link":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/","title":{"rendered":"\u00c9let a von Willebrand betegs\u00e9ggel (VWD)"},"content":{"rendered":"
\n
Melyek a von Willebrand-betegs\u00e9g kezel\u00e9si lehet\u0151s\u00e9gei? Sz\u00fcl\u0151k\u00e9nt hogyan tudom a legjobban gondozni a VWD-s gyermekemet? Hogyan tal\u00e1lom meg a sz\u00e1momra legjobb kezel\u00e9st? Mit jelent a VWD a csal\u00e1dtervez\u00e9s szempontj\u00e1b\u00f3l? A VWD hat\u00e1ssal van a t\u00e1rsas\u00e1gi \u00e9s csal\u00e1di \u00e9letemre: mit tehetek?<\/h5>\n<\/div>\n\n
\n

A von Willebrand-k\u00f3rral (VWD) val\u00f3 egy\u00fctt\u00e9l\u00e9s egy folyamat<\/a>, \u00e9s \u00d6n nincs egyed\u00fcl. F\u00fcggetlen\u00fcl att\u00f3l, hogy nemr\u00e9giben vagy m\u00e1r r\u00e9gen diagnosztiz\u00e1lt\u00e1k VWD-vel, a VWD \u00faj \u00e9s \u00fajabb k\u00e9rd\u00e9seket vethet fel. A betegs\u00e9ggel kapcsolatban gyakran feltett k\u00e9rd\u00e9sek megv\u00e1laszol\u00e1s\u00e1val Prof. Corrales-Medina, Prof. Berntorp \u00e9s koll\u00e9g\u00e1ik az al\u00e1bbiakban t\u00e1mogat\u00e1st ny\u00fajthatnak \u00d6nnek. A t\u00e9m\u00e1k a kezel\u00e9sekkel, a terhess\u00e9ggel \u00e9s sz\u00fcl\u00e9ssel<\/a>, valamint a ment\u00e1lis eg\u00e9szs\u00e9ggel<\/a> is foglalkoznak. Gyakorlati tippeket is tal\u00e1l a norm\u00e1lis \u00e9letvitelhez von Willebrand betegk\u00e9nt. <\/p>\n<\/div>\n\n

\n

A VWD menedzsel\u00e9se<\/h2>\n<\/div>\n\n
\n

A VWD menedzsel\u00e9se sor\u00e1n szoros egy\u00fcttm\u0171k\u00f6d\u00e9sre van sz\u00fcks\u00e9g \u00d6n, mint beteg vagy a beteg sz\u00fcl\u0151je, \u00e9s orvosa k\u00f6z\u00f6tt. Egy\u00fctt kidolgozhatnak egy szem\u00e9lyre szabott kezel\u00e9si tervet, amely figyelembe veszi az \u00d6n egyedi ig\u00e9nyeit \u00e9s k\u00f6r\u00fclm\u00e9nyeit. Az egy\u00e9nre szabott kezel\u00e9si terv minim\u00e1lisra cs\u00f6kkenti a v\u00e9rz\u00e9s kock\u00e1zat\u00e1t, \u00e9s seg\u00edt fenntartani a lehet\u0151 legjobb \u00e9letmin\u0151s\u00e9get. 1<\/sup>

<\/p>

\nVWD kezel\u00e9se<\/h2>

A VWD minden t\u00edpus\u00e1ra l\u00e9teznek hat\u00e1sos kezel\u00e9sek. A kezel\u00e9s megv\u00e1laszt\u00e1s\u00e1t az \u00d6n VWD t\u00edpus\u00e1hoz, a v\u00e9rz\u00e9s s\u00falyoss\u00e1g\u00e1hoz \u00e9s t\u00edpus\u00e1hoz, valamint az \u00d6n esetleges egy\u00e9b eg\u00e9szs\u00e9gi \u00e1llapot\u00e1hoz kell igaz\u00edtani. A legt\u00f6bb VWD-ben szenved\u0151 ember sz\u00e1m\u00e1ra a kezel\u00e9sre csak m\u0171t\u00e9t<\/a> vagy trauma ut\u00e1n van sz\u00fcks\u00e9g. A VWD s\u00falyosabb form\u00e1iban szenved\u0151 embereknek profilaktikus kezel\u00e9sre lehet sz\u00fcks\u00e9g\u00fck a v\u00e9rz\u00e9s megel\u0151z\u00e9se \u00e9rdek\u00e9ben. A megfelel\u0151 kezel\u00e9s \u00e9rdek\u00e9ben az is nagyon fontos, hogy t\u00e1j\u00e9koztassa orvos\u00e1t az \u00d6n \u00e1ltal szedett gy\u00f3gyszerekr\u0151l, mert egyes gy\u00f3gyszerek befoly\u00e1solhatj\u00e1k a VWD kezel\u00e9sek hat\u00e9konys\u00e1g\u00e1t \u00e9s biztons\u00e1goss\u00e1g\u00e1t. \u00c1ltal\u00e1ban azt javasoljuk, hogy a v\u00e9rz\u00e9si rendelleness\u00e9gekre szakosodott k\u00f6zpontt\u00f3l<\/a> k\u00e9rjen tan\u00e1csot arr\u00f3l, hogy melyik kezel\u00e9s a legmegfelel\u0151bb az \u00d6n sz\u00e1m\u00e1ra. 1<\/sup>

A dezmopresszin<\/b> a legt\u00f6bb beteg sz\u00e1m\u00e1ra az els\u0151dleges kezel\u00e9s. A dezmopresszin stimul\u00e1lja a v\u00e9ralvad\u00e1si faktorok felszabadul\u00e1s\u00e1t, \u00e9s gyakran alkalmazz\u00e1k 1-es \u00e9s egyes 2-es t\u00edpus\u00fa VWD-s betegek kezel\u00e9s\u00e9re, de nem haszn\u00e1lj\u00e1k 3-as t\u00edpus\u00fa VWD-s betegek eset\u00e9ben. Emeli a VWF szintet, hogy seg\u00edtse a v\u00e9ralvad\u00e1st. A dezmopresszint gyakran haszn\u00e1lj\u00e1k a v\u00e9rz\u00e9s kezel\u00e9s\u00e9re kisebb m\u0171t\u00e9t<\/a> sor\u00e1n vagy trauma ut\u00e1n, de nem alkalmazhat\u00f3 minden beteg vagy nagyobb m\u0171t\u00e9tek eset\u00e9ben. 1<\/sup>

Von Willebrand faktor (VWF)-tartalm\u00fa koncentr\u00e1tumokkal <\/b>v\u00e9gzett helyettes\u00edt\u0151 ter\u00e1pi\u00e1t akkor alkalmaznak, ha a dezmopresszin hat\u00e1stalan vagy nem javallott. Ezek a koncentr\u00e1tumok helyettes\u00edtik a v\u00e9rb\u0151l hi\u00e1nyz\u00f3, vagy a v\u00e9rz\u00e9s szab\u00e1lyoz\u00e1s\u00e1ban nem megfelel\u0151en m\u0171k\u00f6d\u0151 VWF-et. Bizonyos t\u00edpus\u00fa VWD-ben szenved\u0151k, vagy akiknek s\u00falyos v\u00e9rz\u00e9ses t\u00fcneteik vannak, nagy val\u00f3sz\u00edn\u0171s\u00e9ggel VWF-tartalm\u00fa koncentr\u00e1tumokat haszn\u00e1lnak. Ha s\u00falyos vagy gyakori v\u00e9rz\u00e9ses epiz\u00f3dokat tapasztal, a v\u00e9rz\u00e9s megel\u0151z\u00e9se \u00e9rdek\u00e9ben a VWF-tartalm\u00fa koncentr\u00e1tumokkal v\u00e9gzett rendszeres profilaktikus kezel\u00e9s is el\u0151ny\u00f6s lehet. 1<\/sup>

Bizonyos esetekben, \u00e9s k\u00fcl\u00f6n\u00f6sen az 1-es t\u00edpus\u00fa VWD-ben szenved\u0151 betegekn\u00e9l gyakran haszn\u00e1lnak antifibrinolitikus gy\u00f3gyszereket<\/b>, p\u00e9ld\u00e1ul tranex\u00e1msavat. Ezek a gy\u00f3gyszerek lass\u00edtj\u00e1k a v\u00e9rr\u00f6g\u00f6k sz\u00e9tboml\u00e1s\u00e1t, \u00e9s kisebb m\u0171t\u00e9tekhez, fog\u00e1szati elj\u00e1r\u00e1sokhoz, valamint az er\u0151s menstru\u00e1ci\u00f3s- \u00e9s sz\u00fcl\u00e9s ut\u00e1ni v\u00e9rz\u00e9sek kezel\u00e9s\u00e9re javallottak. A fibrin ragaszt\u00f3 hasznos lehet egy v\u00e9rz\u00e9si hely lez\u00e1r\u00e1s\u00e1ra is, p\u00e9ld\u00e1ul fogh\u00faz\u00e1s ut\u00e1n. Amikor csak lehets\u00e9ges, ezeknek a gy\u00f3gyszereknek a haszn\u00e1lat\u00e1t el\u0151re meg kell tervezni, \u00e9s egy szem\u00e9lyre szabott kezel\u00e9si tervbe kell beilleszteni.1<\/sup>

A VWD-ben szenved\u0151 n\u0151k gyakran tapasztalnak er\u0151s (heves) menstru\u00e1ci\u00f3s v\u00e9rz\u00e9st<\/a> (HMB) \u00e9s v\u00e9rz\u00e9st a terhess\u00e9g \u00e9s sz\u00fcl\u00e9s id\u0151szak\u00e1ban.<\/a> A HMB kezel\u00e9si lehet\u0151s\u00e9gei k\u00f6z\u00e9 tartoznak a hormon\u00e1lis ter\u00e1pi\u00e1k, p\u00e9ld\u00e1ul egy m\u00e9hen bel\u00fcli eszk\u00f6z, amely bizonyos esetekben cs\u00f6kkenteni tudja a menstru\u00e1ci\u00f3s v\u00e9rz\u00e9st. Ha csal\u00e1dot tervez vagy terhes, javasoljuk, hogy a lehet\u0151 leghamarabb konzult\u00e1ljon orvos\u00e1val. Sz\u00e1mos kezel\u00e9s \u00e1ll rendelkez\u00e9sre a VWD-ben szenved\u0151 terhes n\u0151k sz\u00e1m\u00e1ra. Kezel\u0151orvosa kezel\u00e9si tervet fog kidolgozni \u00d6nnel a biztons\u00e1gos \u00e9s eg\u00e9szs\u00e9ges terhess\u00e9g \u00e9s sz\u00fcl\u00e9s \u00e9rdek\u00e9ben.1<\/sup>

A VWD hat\u00e1ssal lehet a ment\u00e1lis \u00e1llapotra<\/a>, a t\u00e1rsadalmi interakci\u00f3kra \u00e9s a gyermekek \u00e9s feln\u0151ttek \u00e9letmin\u0151s\u00e9g\u00e9re is.2-5<\/sup> Az olyan t\u00fcnetek, mint a HMB vagy az \u00edz\u00fcleti v\u00e9rz\u00e9s, gyakran depresszi\u00f3val \u00e9s szorong\u00e1ssal j\u00e1rnak.2<\/sup> A sz\u00fcl\u0151k gyakran agg\u00f3dnak gyermekeik v\u00e9rz\u00e9se miatt \u00e9s a VWD-ben szenved\u0151 gyermekek a betegs\u00e9g miatt probl\u00e9m\u00e1kkal szembes\u00fclhetnek az iskol\u00e1ban vagy j\u00e1t\u00e9k k\u00f6zben.5<\/sup> E kih\u00edv\u00e1sok lek\u00fczd\u00e9se \u00e9rdek\u00e9ben fontos, hogy egyr\u00e9szt \u00f6sszetart\u00f3 szoci\u00e1lis kapcsolatokkal rendelkezzen, m\u00e1sr\u00e9szt megfelel\u0151 kezel\u00e9st \u00e9s oktat\u00e1st kapjon a kezel\u00e9si k\u00f6zpont orvosait\u00f3l.2,3<\/sup><\/p>\n<\/div>\n\n

\n

<\/h2>\n<\/div>\n\n\r\n\r\n\r\n\r\n
\r\n\t

M\u0171t\u00e9t
<\/div><\/h4><\/div>\r\n\t
\r\n\t\t\t\t\t\t\t\t\t\t
\r\n\t\t\t\t\t
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
A von Willebrand-betegs\u00e9gben (VWD<\/a>) szenved\u0151 emberek nagyobb val\u00f3sz\u00edn\u0171s\u00e9ggel tapasztalnak t\u00falzott v\u00e9rz\u00e9st m\u0171t\u00e9t alatt \u00e9s ut\u00e1n<\/a>.1<\/sup> M\u00e9g azok a betegek is, akik a VWD enyh\u00e9bb form\u00e1iban szenvednek, er\u0151s m\u0171t\u00e9t ut\u00e1ni v\u00e9rz\u00e9sr\u0151l sz\u00e1molnak be, amely hossz\u00fa ideig tarthat, vagy visszat\u00e9rhet.1<\/sup> A v\u00e9rz\u00e9s kock\u00e1zata nemcsak a nagy m\u0171t\u00e9tekre korl\u00e1toz\u00f3dik, hanem kisebb m\u0171t\u00e9ti beavatkoz\u00e1sok ut\u00e1n is el\u0151fordulhat, p\u00e9ld\u00e1ul fogh\u00faz\u00e1s ut\u00e1n.<\/strong>2<\/sup><\/strong> Azonban a megfelel\u0151 kezel\u00e9s id\u0151ben cs\u00f6kkentheti a t\u00falzott v\u00e9rz\u00e9s kock\u00e1zat\u00e1t m\u0171t\u00e9t alatt \u00e9s ut\u00e1n egyar\u00e1nt.3,4<\/sup><\/strong><\/div>\n

 <\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
<\/div>\n
\n

Ha VWD-ben szenved, \u00e9s m\u0171t\u00e9tet tervez, nagyon fontos, hogy a m\u0171t\u00e9t el\u0151tt besz\u00e9ljen fogorvos\u00e1val vagy seb\u00e9sz\u00e9vel a betegs\u00e9g\u00e9r\u0151l. Ezt k\u00f6vet\u0151en az orvosnak kezel\u00e9si tervet kell kidolgoznia a m\u0171t\u00e9ttel kapcsolatban. A tervet a VWD alt\u00edpus\u00e1nak \u00e9s s\u00falyoss\u00e1g\u00e1nak pontos diagn\u00f3zis\u00e1n, valamint a v\u00e9rz\u00e9si el\u0151zm\u00e9nyein kell alapulnia. Ez az inform\u00e1ci\u00f3 lehet\u0151v\u00e9 teszi, hogy orvosa meg\u00e9rtse a v\u00e9rz\u00e9s kock\u00e1zat\u00e1t a m\u0171t\u00e9t alatt \u00e9s ut\u00e1n. A tervnek figyelembe kell vennie a v\u00e9grehajtand\u00f3 m\u0171t\u00e9t t\u00edpus\u00e1t, valamint minden egy\u00e9b betegs\u00e9get \u00e9s gy\u00f3gyszert is. Egy\u00fctt ez az inform\u00e1ci\u00f3 elengedhetetlen a m\u0171t\u00e9t el\u0151tti, alatti \u00e9s ut\u00e1ni kezel\u00e9s ir\u00e1ny\u00edt\u00e1s\u00e1hoz.1,2,4<\/sup><\/p>\n

A v\u00e9rz\u00e9s kock\u00e1zat\u00e1nak minimaliz\u00e1l\u00e1sa \u00e9rdek\u00e9ben m\u0171t\u00e9t alatt, szak\u00e9rt\u0151k kezel\u00e9si ir\u00e1nyelveket dolgoztak ki mind kisebb, mind nagyobb m\u0171t\u00e9tekhez VWD-s betegek sz\u00e1m\u00e1ra. A VWD t\u00edpus\u00e1t\u00f3l \u00e9s a m\u0171t\u00e9t t\u00edpus\u00e1t\u00f3l f\u00fcgg\u0151en ezek az ir\u00e1nyelvek le\u00edrj\u00e1k, hogy milyen kezel\u00e9st kell kapnia a v\u00e9ralvad\u00e1s helyre\u00e1ll\u00edt\u00e1sa \u00e9rdek\u00e9ben, \u00e9s mennyi ideig.3<\/sup> Kisebb m\u0171t\u00e9tekhez, p\u00e9ld\u00e1ul egyszer\u0171 fogh\u00faz\u00e1shoz, ak\u00e1r 5 napig is sz\u00fcks\u00e9g lehet kezel\u00e9sre.4<\/sup> Nagyobb m\u0171t\u00e9tekhez, mint p\u00e9ld\u00e1ul sz\u00edvm\u0171t\u00e9t, m\u00e9helt\u00e1vol\u00edt\u00e1s vagy \u00edz\u00fcleti p\u00f3tl\u00e1s, a kezel\u00e9snek vissza kell \u00e1ll\u00edtania a v\u00e9ralvad\u00e1st a m\u0171t\u00e9t el\u0151tt, \u00e9s legal\u00e1bb 3 nappal a m\u0171t\u00e9t ut\u00e1n, am\u00edg a v\u00e9rz\u00e9s kock\u00e1zata cs\u00f6kken.3<\/sup> N\u00e9h\u00e1ny m\u0171t\u00e9t eset\u00e9ben, mint p\u00e9ld\u00e1ul a t\u00e9rdprot\u00e9zis m\u0171t\u00e9t feln\u0151tteknek vagy a mandulam\u0171t\u00e9t gyermekeknek, ak\u00e1r 2 h\u00e9t is sz\u00fcks\u00e9ges a v\u00e9rz\u00e9s kock\u00e1zat\u00e1nak cs\u00f6kkent\u00e9s\u00e9hez, \u00e9s a kezel\u00e9si tervet ennek megfelel\u0151en kell m\u00f3dos\u00edtani.4,5<\/sup><\/p>\n

V\u00e9g\u00fcl, ha injekci\u00f3ra van sz\u00fcks\u00e9ge, fontos, hogy a n\u0151v\u00e9r\u00e9t\u0151l vagy orvos\u00e1t\u00f3l is \u00e9rdekl\u0151dj\u00f6n a VWD-r\u0151l. Az injekci\u00f3, amelyet k\u00f6zvetlen\u00fcl a b\u0151r al\u00e1 adnak be, seg\u00edthet elker\u00fclni a f\u00e1jdalmas izomv\u00e9rz\u00e9st, p\u00e9ld\u00e1ul egy v\u00e9d\u0151olt\u00e1s ut\u00e1n.2<\/sup><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

\r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\r\n\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t
Hivatkoz\u00e1sok<\/h5>\r\n\t\t\t\t\t\t\t
    \n
  1. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/;<\/a> last accessed Feb 2023.<\/li>\n
  2. https:\/\/www.cdc.gov\/ncbddd\/vwd\/women.html;<\/a> last accessed Feb 2023.<\/li>\n
  3. Leebeek FWG, et al. Blood 2020; 136:2143-50.<\/li>\n
  4. Janbain M and Kouides P Int J Womens Health 2022; 14:1307-13.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n
    \r\n\t

    Terhess\u00e9g \u00e9s sz\u00fcl\u00e9s
    <\/div><\/h4><\/div>\r\n\t
    \r\n\t\t\t\t\t\t\t\t\t\t
    \r\n\t\t\t\t\t
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    Tervezhet csal\u00e1dot<\/span>,<\/span> ha<\/span> von<\/span> Willebrand<\/span>–<\/span>betegs\u00e9ge<\/span><\/a> (<\/span>VWD<\/span>)<\/span> van<\/span>.<\/span> Megfelel\u0151<\/span> orvosi<\/span> ell\u00e1t\u00e1ssal<\/span> sikeres<\/span> terhess\u00e9gre<\/span>\u00a0\u00e9s<\/span> eg\u00e9szs\u00e9ges<\/span> bab\u00e1ra sz\u00e1m\u00edthat<\/span>.<\/span> Annak<\/span> \u00e9rdek\u00e9ben<\/span>,<\/span> hogy<\/span> \u00d6n<\/span> \u00e9s<\/span> gyermeke<\/span> biztons\u00e1gban<\/span> legyenek<\/span>,<\/span> besz\u00e9ljen<\/span> kezel\u0151orvos\u00e1val<\/span>,<\/span> ha<\/span> terhess\u00e9get<\/span> tervez<\/span> vagy<\/span> m\u00e1r<\/span> terhes<\/span>.<\/span> Kezel\u0151orvosa<\/span> meg<\/span> fogja<\/span> besz\u00e9lni<\/span> \u00d6nnel<\/span> a<\/span> terhess\u00e9ggel<\/span>,<\/span> a<\/span> prenat\u00e1lis<\/span> vizsg\u00e1latokkal \u00e9s<\/span> a<\/span> sz\u00fcl\u00e9ssel<\/span> kapcsolatos<\/span> kock\u00e1zatokat<\/span>,<\/span> valamint<\/span> annak<\/span> lehet\u0151s\u00e9g\u00e9t<\/span>,<\/span> hogy<\/span> gyermeke<\/span> is VWD<\/span>-s lehet<\/span>.<\/span> Megbesz\u00e9lheti<\/span> a<\/span> kor\u00e1bbi<\/span> terhess\u00e9geit<\/span>,<\/span> szem\u00e9lyes<\/span> \u00e9s<\/span> csal\u00e1dja<\/span> v\u00e9rz\u00e9si<\/span> el\u0151zm\u00e9nyeit<\/span>,<\/span> vagy<\/span> az \u00d6n esetleges\u00a0vet\u00e9l\u00e9s\u00e9t.<\/span>\u00a0Az<\/span> \u00d6n<\/span> egy\u00e9ni<\/span> v\u00e9rz\u00e9si<\/span> kock\u00e1zata<\/span> alapj\u00e1n<\/span> orvosa<\/span> ezut\u00e1n<\/span> megtervezi<\/span> a<\/span> biztons\u00e1gos<\/span> terhess\u00e9get<\/span> \u00e9s<\/span> sz\u00fcl\u00e9st.1-3<\/sup><\/span><\/strong><\/div>\n

     <\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    I<\/span>lyen<\/span> tervez\u00e9<\/span>s<\/span> sz\u00fcks\u00e9ges<\/span> a<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151<\/span> n\u0151k<\/span> sz\u00e1m\u00e1ra<\/span>,<\/span> hogy<\/span> minimaliz\u00e1lj\u00e1k<\/span> a<\/span> sz\u00fcl\u00e9s<\/span> alatt<\/span> \u00e9s<\/span> ut\u00e1n<\/span> esetleg felmer\u00fcl\u0151<\/span> kock\u00e1zatokat<\/span>.<\/span> Eg\u00e9szs\u00e9ges<\/span> n\u0151kn\u00e9l<\/span> a<\/span> v\u00e9ralvad\u00e1si<\/span> faktoroknak<\/span> nevezett<\/span> v\u00e9rfeh\u00e9rj\u00e9k<\/span> szintje<\/span> emelkedik<\/span> a<\/span> terhess\u00e9g<\/span> alatt<\/span>,<\/span> hogy<\/span> megv\u00e9dje<\/span> a<\/span> leend\u0151<\/span> any\u00e1t<\/span> a<\/span> sz\u00fcl\u00e9s<\/span> alatti<\/span> \u00e9s<\/span> ut\u00e1ni<\/span> t\u00falzott<\/span> v\u00e9rz\u00e9st\u0151l<\/span>.<\/span> A<\/span> betegs\u00e9gben<\/span> nem<\/span> szenved\u0151<\/span> n\u0151kh\u00f6z<\/span> k\u00e9pest<\/span> a<\/span> VWD<\/span>-s<\/span>\u00a0n\u0151kn\u00e9l a v\u00e9ralvad\u00e1si<\/span> faktorok<\/span><\/span> szintje a terhess\u00e9g<\/span> alatt<\/span><\/span> gyakran<\/span> alacsonyabb<\/span>.\u00a0<\/span> A<\/span> v\u00e9ralvad\u00e1si<\/span> faktorok<\/span> v\u00e1ltoz\u00f3<\/span> szintje<\/span> miatt<\/span> a<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151<\/span> terhes<\/span> n\u0151k<\/span> v\u00e9r\u00e9t<\/span> rendszeresen<\/span> ellen\u0151rizni<\/span> kell<\/span>,<\/span> k\u00fcl\u00f6n\u00f6sen<\/span> a<\/span> harmadik<\/span> trimeszterben<\/span>.<\/span> Ha<\/span> a<\/span> funkcion\u00e1lis<\/span> v\u00e9ralvad\u00e1si<\/span> faktorok<\/span> szintje<\/span> t\u00fal<\/span> alacsony<\/span>,<\/span> profilaktikus<\/span> kezel\u00e9st<\/span> kell<\/span> adni<\/span> a<\/span> sz\u00fcl\u00e9s<\/span> alatt<\/span> \u00e9s<\/span> ut\u00e1n<\/span>.<\/span> A<\/span> sz\u00fcl\u00e9s<\/span> alatti<\/span> \u00e9s<\/span> ut\u00e1ni<\/span> v\u00e9rz\u00e9s<\/span> kock\u00e1zat\u00e1nak<\/span> tov\u00e1bbi<\/span> cs\u00f6kkent\u00e9se<\/span> \u00e9rdek\u00e9ben<\/span> kezel\u0151orvosa<\/span> d\u00f6nthet<\/span> hematol\u00f3gus szakorvos bevon\u00e1sa mellett, vagy javasolhatja, hogy a sz\u00fcl\u00e9s szakk\u00f3rh\u00e1zban t\u00f6rt\u00e9nj\u00e9k.1-3<\/sup><\/span><\/div>\n

     <\/p>\n<\/div>\n

    <\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    \n
    Lehets\u00e9ges<\/span>,<\/span> hogy<\/span> sz\u00fcletend\u0151<\/span> gyermek\u00e9nek<\/span> is<\/span> VWD<\/span>–<\/span>je<\/span> lesz<\/span>.<\/span> M\u00edg<\/span> a legt\u00f6bb<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151<\/span> csecsem\u0151nek<\/span> nincs<\/span> probl\u00e9m\u00e1ja<\/span> a<\/span> v\u00e9rz\u00e9ssel<\/span> a<\/span> sz\u00fcl\u00e9s<\/span> sor\u00e1n<\/span>,<\/span> fontos<\/span>,<\/span> hogy<\/span> tiszt\u00e1ban<\/span> legyen<\/span> a<\/span> lehet\u0151s\u00e9ggel<\/span>,<\/span> hogy<\/span> megtehesse<\/span> a<\/span> sz\u00fcks\u00e9ges<\/span> \u00f3vint\u00e9zked\u00e9seket<\/span>.<\/span> Ez\u00e9rt<\/span> azokat<\/span> a csal\u00e1dokat<\/span>, ahol<\/span> az<\/span> egyik<\/span> sz\u00fcl\u0151<\/span> s\u00falyos<\/span> VWD<\/span>–<\/span>ben szenved<\/span>,<\/span> nemcsak<\/span> a<\/span> VWD<\/span>–s<\/span> gyermek<\/span> v\u00e1llal\u00e1s\u00e1r\u00f3l<\/span> kell<\/span> t\u00e1j\u00e9koztatni<\/span>,<\/span> hanem<\/span> a<\/span> terhess\u00e9ggel<\/span>\u00a0\u00e9s<\/span> a<\/span> sz\u00fcl\u00e9s<\/span> m\u00f3dj\u00e1val kapcsolatos <\/span>k\u00f6vetkezm\u00e9nyekr\u0151l<\/span> is.1-3<\/sup><\/span><\/span><\/div>\n

     <\/p>\n

    <\/div>\n
    Fontos tudni<\/span>,<\/span> hogy<\/span> mindezek<\/span> a<\/span> kock\u00e1zatok<\/span> hat\u00e9konyan<\/span> kezelhet\u0151k<\/span> megfelel\u0151<\/span> monitoroz\u00e1ssal<\/span> \u00e9s<\/span> kezel\u00e9si<\/span> tervvel<\/span> a sz\u00fcl\u00e9s<\/span> el\u0151tti<\/span>,<\/span> alatti<\/span> \u00e9s<\/span> ut\u00e1ni<\/span> gondoz\u00e1sra<\/span> vonatkoz\u00f3an<\/span> az<\/span> \u00d6n<\/span> \u00e9s<\/span> a baba<\/span> sz\u00e1m\u00e1ra.3,4<\/sup><\/span><\/span><\/span><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t
    \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t
    \r\n\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t
    Hivatkoz\u00e1sok<\/h5>\r\n\t\t\t\t\t\t\t
      \n
    1. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/;<\/a> last accessed Feb 2023.<\/li>\n
    2. https:\/\/www.cdc.gov\/ncbddd\/vwd\/women.html;<\/a> last accessed Feb 2023.<\/li>\n
    3. Leebeek FWG, et al. Blood 2020; 136:2143-50.<\/li>\n
    4. Janbain M and Kouides P Int J Womens Health 2022; 14:1307-13.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n
      \r\n\t

      Ment\u00e1lis eg\u00e9szs\u00e9g
      <\/div><\/h4><\/div>\r\n\t
      \r\n\t\t\t\t\t\t\t\t\t\t
      \r\n\t\t\t\t\t
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      Egy<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9g<\/span> jelent\u0151s \u00a0lehet<\/span> az \u00d6n<\/span> \u00e9let\u00e9ben<\/span>.<\/span> A<\/span> v\u00e9rz\u00e9s<\/span> kock\u00e1zata<\/span> hat\u00e1ssal<\/span> lehet<\/span> fizikai<\/span> eg\u00e9szs\u00e9g\u00e9re<\/span>,<\/span> \u00e9rzelmi<\/span> \u00e9s<\/span> ment\u00e1lis<\/span> \u00e1llapot\u00e1ra<\/span>,<\/span> viselked\u00e9s\u00e9re<\/span>,<\/span> csal\u00e1di<\/span> kapcsolataira<\/span> \u00e9s<\/span> t\u00e1rsadalmi<\/span> \u00e9let\u00e9re<\/span>.1<\/sup><\/span><\/span><\/span>\u00a0A<\/span> t\u00fcnetek<\/span> korl\u00e1tozhatj\u00e1k<\/span> napi<\/span> tev\u00e9kenys\u00e9geit<\/span>,<\/span> aggodalmakhoz<\/span> vezethetnek<\/span> a<\/span> j\u00f6v\u0151t illet\u0151en<\/span>\u00a0\u00e9s<\/span> bizonytalann\u00e1<\/span> tehetik<\/span> az<\/span> intim<\/span> kapcsolataiban<\/span>.<\/span> Ezek<\/span> a<\/span> korl\u00e1toz\u00e1sok<\/span> \u00e9s<\/span> aggodalmak<\/span> gyakran<\/span> a<\/span> csal\u00e1dtagokat<\/span> is<\/span> \u00e9rintik<\/span>.<\/span> Az<\/span> \u00e9letmin\u0151s\u00e9gre<\/span> gyakorolt<\/span> hat\u00e1s<\/span> m\u00e9g<\/span> hangs\u00falyosabb<\/span> lehet<\/span>,<\/span> ha<\/span> a<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9get<\/span> nem<\/span> diagnosztiz\u00e1lj\u00e1k<\/span>,<\/span> ahogy<\/span> sajnos<\/span> gyakran<\/span> el\u0151fordul<\/span> a<\/span> von<\/span> Willebrand<\/span>–<\/span>k\u00f3r<\/span><\/a> (<\/span>VWD<\/span>)<\/span> eset\u00e9ben<\/span>.1-3<\/sup><\/span><\/span>\u00a0A<\/span> nem<\/span> diagnosztiz\u00e1lt<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151k<\/span> nem<\/span> f\u00e9rnek<\/span> hozz\u00e1<\/span> a megfelel\u0151<\/span> kezel\u00e9shez<\/span> \u00e9s<\/span> t\u00e1mogat\u00e1shoz<\/span>.<\/span> Szoci\u00e1lis<\/span> t\u00e1mogat\u00e1s<\/span> n\u00e9lk\u00fcl<\/span> a VWD<\/span>-s <\/span>betegek<\/span> gyakran<\/span> mutatj\u00e1k<\/span> a<\/span> szorong\u00e1s<\/span> \u00e9s<\/span> a<\/span> depresszi\u00f3<\/span> jeleit<\/span>.2,3<\/sup><\/span><\/span>\u00a0M\u00e9g<\/span> a<\/span> diagn\u00f3zis<\/span> fel\u00e1ll\u00edt\u00e1sa<\/span> ut\u00e1n<\/span> is<\/span>\u00a0tudom\u00e1sul\u00a0 kell venni<\/span>,<\/span> hogy<\/span> a<\/span> VWD<\/span> tov\u00e1bbra <\/span>is<\/span> egy<\/span> eg\u00e9sz<\/span> \u00e9leten<\/span> \u00e1t<\/span> tart\u00f3 <\/span>\u00e1llapot<\/span>,<\/span> amely<\/span> \u00e1lland\u00f3<\/span> kih\u00edv\u00e1sokkal<\/span> j\u00e1r<\/span> a<\/span> betegek<\/span>,<\/span> csal\u00e1djuk<\/span> \u00e9s<\/span> k\u00f6rnyezet\u00fck<\/span> sz\u00e1m\u00e1ra<\/span>.<\/span><\/strong><\/div>\n

       <\/p>\n

      <\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n

      A<\/span> sz\u00fcl\u0151i szerep<\/span> is<\/span> kih\u00edv\u00e1sokat<\/span> jelent<\/span> a<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151k<\/span> sz\u00e1m\u00e1ra<\/span>.<\/span> A<\/span> VWD<\/span> \u00e9s<\/span> m\u00e1s<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9gek<\/span> \u00f6r\u00f6kletes<\/span> betegs\u00e9gek<\/span>,<\/span> \u00e9s<\/span> a<\/span> diagn\u00f3zis<\/span> s\u00falyos<\/span> hat\u00e1ssal<\/span> lehet<\/span> a<\/span> csal\u00e1dtervez\u00e9sre<\/span>.<\/span> A<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9gben<\/span> szenved\u0151<\/span> gyermek<\/span> sz\u00fcleik\u00e9nt<\/span> b\u0171ntudatot<\/span> \u00e9s<\/span> \u00f6nv\u00e1dat<\/span> \u00e9rezhet<\/span> gyermeke<\/span> betegs\u00e9ge<\/span> miatt<\/span>.<\/span> S\u0151t<\/span>,<\/span> a<\/span> v\u00e9rz\u00e9st\u0151l<\/span> val\u00f3<\/span> f\u00e9lelem<\/span> miatt<\/span> t\u00fals\u00e1gosan v\u00e9delmezheti<\/span> gyermek\u00e9t<\/span>,<\/span> \u00e9s<\/span> korl\u00e1tozhatja<\/span> t\u00e1rsadalmi<\/span> vagy<\/span> sporttev\u00e9kenys\u00e9geit<\/span>.<\/span> Azonban<\/span> minden<\/span> \u00f3v\u00f3 int\u00e9zked\u00e9snek<\/span> egyens\u00falyban<\/span> kell<\/span> lennie<\/span> a<\/span> gyermek fejl\u0151d\u00e9s\u00e9hez<\/span>\u00a0\u00e9s<\/span> \u00f6nbizalma\u00a0 \u00e9p\u00edt\u00e9s\u00e9hez sz\u00fcks\u00e9ges<\/span>\u00a0szabads\u00e1ggal<\/span>,<\/span> ami<\/span> fontos<\/span> a<\/span> gyermek<\/span> \u00e9r\u00e9se<\/span> szempontj\u00e1b\u00f3l<\/span>.<\/span> Az<\/span> egyszer\u0171<\/span> v\u00e9d\u0151int\u00e9zked\u00e9sek<\/span>,<\/span> a<\/span> megfelel\u0151<\/span> tev\u00e9kenys\u00e9gek<\/span> kiv\u00e1laszt\u00e1sa<\/span> \u00e9s<\/span> a<\/span> hat\u00e9kony<\/span> kezel\u00e9shez<\/span> val\u00f3<\/span> k\u00f6nny\u0171<\/span> hozz\u00e1f\u00e9r\u00e9s<\/span> kombin\u00e1ci\u00f3ja<\/span> seg\u00edthet<\/span> megtal\u00e1lni<\/span> ezt<\/span> az<\/span> egyens\u00falyt<\/span>.2,4<\/sup><\/span><\/span><\/span><\/p>\n

      A<\/span> serd\u00fcl\u0151kor<\/span> k\u00fcl\u00f6n\u00f6sen<\/span> neh\u00e9z<\/span> id\u0151szak<\/span> lehet<\/span> a<\/span> VWD<\/span>–<\/span>ben<\/span> szenved\u0151k<\/span> sz\u00e1m\u00e1ra<\/span>.<\/span> A serd\u00fcl\u0151 nagyobb<\/span> felel\u0151ss\u00e9get<\/span> v\u00e1llal<\/span> a<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9g<\/span> kezel\u00e9s\u00e9ben<\/span><\/a>,<\/span> ez\u00e9rt nagyon<\/span> fontos<\/span>,<\/span> hogy<\/span> betartsa<\/span> a<\/span> kezel\u00e9si protokollt<\/span>.<\/span> Ha<\/span> saj\u00e1t<\/span> maga<\/span>\u00a0ir\u00e1ny\u00edtja<\/span>\u00a0a<\/span> betegs\u00e9ge kezel\u00e9s\u00e9t<\/span>, az<\/span> nem<\/span> csak<\/span> a<\/span> v\u00e9rz\u00e9s<\/span> \u00e9s<\/span> a<\/span> f\u00e1jdalom<\/span> kock\u00e1zat\u00e1t<\/span> cs\u00f6kkenti<\/span>,<\/span> hanem<\/span> \u00f6nbizalmat<\/span> is<\/span> ad<\/span> a<\/span> k\u00e9pess\u00e9geket illet\u0151en<\/span>,<\/span> \u00e9s<\/span> seg\u00edt<\/span> fenntartani<\/span> a\u00a0ment\u00e1lis<\/span> eg\u00e9szs\u00e9get<\/span> \u00e9s<\/span> a megszokott<\/span>\u00a0t\u00e1rsadalmi<\/span> \u00e9letet.2,6<\/sup><\/span><\/span><\/span><\/span><\/p>\n<\/div>\n

       <\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      <\/div>\n
      A<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9gekkel<\/span> k\u00fczd\u0151<\/span> n\u0151k<\/span> ment\u00e1lis<\/span> eg\u00e9szs\u00e9g\u00e9t<\/span> \u00e9s<\/span> \u00e9letmin\u0151s\u00e9g\u00e9t<\/span> gyakran<\/span> er\u0151sen<\/span> befoly\u00e1solja<\/span> betegs\u00e9g\u00fck<\/span>.<\/span> Ha<\/span> VWD<\/span>–<\/span>je<\/span> van<\/span>, <\/span>\u00a0nagy<\/span> es\u00e9ly<\/span> van<\/span> arra<\/span>,<\/span> hogy<\/span> er\u0151s<\/span> menstru\u00e1ci\u00f3s<\/span> v\u00e9rz\u00e9st<\/span><\/a> (<\/span>HMB<\/span>) is<\/span> tapasztal<\/span>.<\/span> A<\/span> v\u00e9rvesztes\u00e9g<\/span> \u00e9s<\/span> a<\/span> g\u00f6rcs\u00f6k er\u0151sen<\/span> zavarhatj\u00e1k<\/span> a<\/span> mindennapi<\/span> \u00e9letet<\/span>,<\/span> a<\/span> sportol\u00e1st<\/span> \u00e9s<\/span> m\u00e1s<\/span> fizikai<\/span> tev\u00e9kenys\u00e9geket<\/span>,<\/span> valamint<\/span> a<\/span> t\u00e1rsadalmi<\/span> \u00e9s<\/span> romantikus<\/span> kapcsolatokat.<\/span> A<\/span> HMB<\/span> gyakran<\/span> hi\u00e1nyz\u00e1sokat okoz az<\/span> iskol\u00e1ban<\/span>\u00a0\u00e9s munkahelyen. <\/span>\u00a0A tev\u00e9kenys\u00e9gek korl\u00e1tai \u00e9s az<\/span> elfogad\u00e1s<\/span>\u00a0hi\u00e1nya<\/span> miatt<\/span> a<\/span> VWD<\/span>–ben<\/span> szenved\u0151<\/span> n\u0151k ment\u00e1lis eg\u00e9szs\u00e9ge<\/span> gyakran<\/span> rossz,<\/span> elszigetelts\u00e9g \u00e9rz\u00e9s\u00e9vel, eredm\u00e9nytelens\u00e9ggel <\/span>\u00e9s<\/span> rossz<\/span> hangulattal<\/span>.<\/span> Fontos<\/span>,<\/span> hogy<\/span> a<\/span> HMB<\/span> kezelhet\u0151<\/span>,<\/span> \u00e9s<\/span> a<\/span> kezel\u00e9s<\/span> jav\u00edthatja<\/span> a<\/span> VWD<\/span>–ben<\/span>\u00a0\u00a0HMB<\/span>–<\/span>ben<\/span> szenved\u0151<\/span> n\u0151k<\/span> \u00e9letmin\u0151s\u00e9g\u00e9t.4,5<\/sup><\/span><\/span><\/span><\/span><\/span><\/div>\n

       <\/p>\n

      <\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      \n
      A<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9g<\/span> ment\u00e1lis<\/span> \u00e9s<\/span> t\u00e1rsadalmi<\/span> hat\u00e1sainak<\/span> korl\u00e1toz\u00e1s\u00e1nak<\/span> egyik<\/span> kulcsa<\/span> az<\/span> er\u0151s<\/span> t\u00e1mogat\u00f3<\/span> h\u00e1l\u00f3zat<\/span>.<\/span> Ez<\/span> mag\u00e1ban<\/span> foglalhatja<\/span> csal\u00e1dj\u00e1t<\/span> \u00e9s<\/span> bar\u00e1tait<\/span>,<\/span> valamint<\/span> szoci\u00e1lis<\/span> szolg\u00e1latokat<\/span> \u00e9s<\/span> eg\u00e9szs\u00e9g\u00fcgyi<\/span> szolg\u00e1ltat\u00f3kat<\/span>.3<\/sup><\/span><\/span><\/span><\/span><\/span><\/span>\u00a0Ha<\/span> alacsonynak<\/span>,<\/span> szorong\u00f3nak<\/span> vagy<\/span> depresszi\u00f3snak<\/span> \u00e9rzi<\/span> mag\u00e1t<\/span>,<\/span> besz\u00e9ljen<\/span> kezel\u0151orvos\u00e1val<\/span> vagy<\/span> a<\/span> kezel\u00e9si<\/span> k\u00f6zpont<\/span> szakembereivel<\/span> is<\/span> az<\/span> \u00e9rz\u00e9seir\u0151l<\/span>.<\/span> K\u00e9pesek<\/span> lesznek<\/span> t\u00e1mogatni<\/span> \u00d6nt<\/span>,<\/span> \u00e9s<\/span> elvezetni<\/span> \u00d6nt<\/span> a<\/span> sok<\/span> hasznos<\/span> forr\u00e1shoz<\/span>,<\/span> amelyeket<\/span> a<\/span> szak\u00e9rt\u0151k<\/span> fejlesztettek<\/span> ki<\/span> a<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9gekkel<\/span> k\u00fczd\u0151<\/span> emberek<\/span> ment\u00e1lis<\/span> eg\u00e9szs\u00e9g\u00e9nek<\/span> v\u00e9delme<\/span> \u00e9rdek\u00e9ben<\/span>.<\/span> A<\/span> kezel\u00e9si<\/span> k\u00f6zpont<\/span> szem\u00e9lyzete<\/span> seg\u00edthet<\/span> olyan<\/span> pszichol\u00f3gusok<\/span> \u00e9s<\/span> tan\u00e1csad\u00f3k<\/span> megtal\u00e1l\u00e1s\u00e1ban<\/span> is<\/span>,<\/span> akik<\/span>\u00a0tapasztaltak<\/span> a<\/span> v\u00e9rz\u00e9si<\/span> rendelleness\u00e9gekkel<\/span> k\u00fczd\u0151<\/span> emberekkel<\/span> v\u00e9gzend\u0151<\/span> munk\u00e1ban<\/span>.<\/span> Azt<\/span> is<\/span> er\u0151sen javasoljuk<\/span>,<\/span> hogy<\/span> vegye<\/span> fel<\/span> a<\/span> kapcsolatot<\/span> egy<\/span> helyi<\/span> betegcsoporttal<\/span>.<\/span> Itt<\/span> megvitathatja<\/span> tapasztalatait<\/span>,<\/span> \u00e9rzelmeit<\/span> \u00e9s<\/span> elv\u00e1r\u00e1sait<\/span> a VWD<\/span>–<\/span>vel<\/span> kapcsolatban<\/span>,<\/span> \u00e9s<\/span> gyakorlati<\/span> tan\u00e1csokat<\/span> kaphat<\/span> betegt\u00e1rsait\u00f3l<\/span>.<\/span> A<\/span> VWD<\/span> ritka<\/span> betegs\u00e9g<\/span>,<\/span> de<\/span> \u00d6n nincs egyed\u00fcl<\/span>,<\/span> \u00e9s<\/span> a<\/span> seg\u00edts\u00e9g<\/span> k\u00e9zn\u00e9l<\/span> van.<\/span><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t
      \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t
      \r\n\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t
      Hivatkoz\u00e1sok<\/h5>\r\n\t\t\t\t\t\t\t
        \n
      1. van Hoorn ES, et al. Haemophilia 2022; 28:197-214.<\/li>\n
      2. https:\/\/www.hemophilia.org\/sites\/default\/files\/document\/files\/nurses-guide-chapter-13a-child-development-with-bleeding-disorder-transition.pdf<\/a>; last accessed Mar 2023.<\/li>\n
      3. Roberts JC, et al. Haemophilia 2022; doi: 10.1111\/hae.14725.<\/li>\n
      4. VanderMeulen H, et al. Hematology Am Soc Hematol Educ Program 2022 1: 631-6.<\/li>\n
      5. Sanigorska A, et al. Res Pract Thromb Haemost 2022; 6:e12652.<\/li>\n
      6. McLaughlin JM, et al. Health and Quality of Life Outcomes, 2017: 15:67.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n
        \n
        Referenci\u00e1k<\/h6>\n<\/div>\n\n
        \n
          \n
        1. Connell NT et al. Blood Advances<\/em> 2021; 5:301-25.<\/li>\n<\/div>\n\n
          \n
        2. Roberts JC et al. Haemophilia<\/em> 2022; doi:10.1111\/hae.14725.<\/li>\n<\/div>\n\n
          \n
        3. Rae C et al. Haemophilia 2013; 19:385-91.<\/li>\n<\/div>\n\n
          \n
        4. De Wee et al. J Thromb Haemost<\/em> 2010; 8:1492-9.<\/li>\n<\/div>\n\n
          \n
        5. De Wee et al. J Thromb Haemost<\/em> 2011; 9:502-9.<\/li>\n<\/div><\/ol>\n<\/div>","protected":false},"excerpt":{"rendered":"

          Melyek a von Willebrand-betegs\u00e9g kezel\u00e9si lehet\u0151s\u00e9gei? Sz\u00fcl\u0151k\u00e9nt hogyan tudom a legjobban gondozni a VWD-s gyermekemet? Hogyan tal\u00e1lom meg a sz\u00e1momra legjobb kezel\u00e9st? Mit jelent a VWD a csal\u00e1dtervez\u00e9s szempontj\u00e1b\u00f3l? A VWD hat\u00e1ssal van a t\u00e1rsas\u00e1gi \u00e9s csal\u00e1di \u00e9letemre: mit tehetek? A von Willebrand-k\u00f3rral (VWD) val\u00f3 egy\u00fctt\u00e9l\u00e9s egy folyamat, \u00e9s \u00d6n nincs egyed\u00fcl. F\u00fcggetlen\u00fcl att\u00f3l, hogy […]<\/p>\n","protected":false},"author":1,"featured_media":1663,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false},"acf":[],"yoast_head":"\n\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary\" \/>\n<meta property=\"og:description\" content=\"Melyek a von Willebrand-betegs\u00e9g kezel\u00e9si lehet\u0151s\u00e9gei? Sz\u00fcl\u0151k\u00e9nt hogyan tudom a legjobban gondozni a VWD-s gyermekemet? Hogyan tal\u00e1lom meg a sz\u00e1momra legjobb kezel\u00e9st? Mit jelent a VWD a csal\u00e1dtervez\u00e9s szempontj\u00e1b\u00f3l? A VWD hat\u00e1ssal van a t\u00e1rsas\u00e1gi \u00e9s csal\u00e1di \u00e9letemre: mit tehetek? A von Willebrand-k\u00f3rral (VWD) val\u00f3 egy\u00fctt\u00e9l\u00e9s egy folyamat, \u00e9s \u00d6n nincs egyed\u00fcl. F\u00fcggetlen\u00fcl att\u00f3l, hogy […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/\" \/>\n<meta property=\"og:site_name\" content=\"Hungary\" \/>\n<meta property=\"article:modified_time\" content=\"2026-01-19T14:22:59+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/vwdtest.com\/hu\/wp-content\/uploads\/sites\/63\/2023\/09\/Living-with-VWD.png\" \/>\n\t<meta property=\"og:image:width\" content=\"560\" \/>\n\t<meta property=\"og:image:height\" content=\"889\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/\",\"url\":\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/\",\"name\":\"\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary\",\"isPartOf\":{\"@id\":\"https:\/\/vwdtest.com\/hu\/#website\"},\"datePublished\":\"2023-04-28T14:26:00+00:00\",\"dateModified\":\"2026-01-19T14:22:59+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/vwdtest.com\/hu\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"\u00c9let a von Willebrand betegs\u00e9ggel (VWD)\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/vwdtest.com\/hu\/#website\",\"url\":\"https:\/\/vwdtest.com\/hu\/\",\"name\":\"Hungary\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/vwdtest.com\/hu\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary","robots":{"index":"noindex","follow":"follow"},"og_locale":"en_US","og_type":"article","og_title":"\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary","og_description":"Melyek a von Willebrand-betegs\u00e9g kezel\u00e9si lehet\u0151s\u00e9gei? Sz\u00fcl\u0151k\u00e9nt hogyan tudom a legjobban gondozni a VWD-s gyermekemet? Hogyan tal\u00e1lom meg a sz\u00e1momra legjobb kezel\u00e9st? Mit jelent a VWD a csal\u00e1dtervez\u00e9s szempontj\u00e1b\u00f3l? A VWD hat\u00e1ssal van a t\u00e1rsas\u00e1gi \u00e9s csal\u00e1di \u00e9letemre: mit tehetek? A von Willebrand-k\u00f3rral (VWD) val\u00f3 egy\u00fctt\u00e9l\u00e9s egy folyamat, \u00e9s \u00d6n nincs egyed\u00fcl. F\u00fcggetlen\u00fcl att\u00f3l, hogy […]","og_url":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/","og_site_name":"Hungary","article_modified_time":"2026-01-19T14:22:59+00:00","og_image":[{"width":560,"height":889,"url":"https:\/\/vwdtest.com\/hu\/wp-content\/uploads\/sites\/63\/2023\/09\/Living-with-VWD.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/","url":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/","name":"\u00c9let a von Willebrand betegs\u00e9ggel (VWD) - Hungary","isPartOf":{"@id":"https:\/\/vwdtest.com\/hu\/#website"},"datePublished":"2023-04-28T14:26:00+00:00","dateModified":"2026-01-19T14:22:59+00:00","breadcrumb":{"@id":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/vwdtest.com\/hu\/i-live-with-vwd\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/vwdtest.com\/hu\/"},{"@type":"ListItem","position":2,"name":"\u00c9let a von Willebrand betegs\u00e9ggel (VWD)"}]},{"@type":"WebSite","@id":"https:\/\/vwdtest.com\/hu\/#website","url":"https:\/\/vwdtest.com\/hu\/","name":"Hungary","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/vwdtest.com\/hu\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"}]}},"_links":{"self":[{"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/pages\/829"}],"collection":[{"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/comments?post=829"}],"version-history":[{"count":352,"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/pages\/829\/revisions"}],"predecessor-version":[{"id":4164,"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/pages\/829\/revisions\/4164"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/media\/1663"}],"wp:attachment":[{"href":"https:\/\/vwdtest.com\/hu\/wp-json\/wp\/v2\/media?parent=829"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}