{"id":829,"date":"2023-04-28T14:26:00","date_gmt":"2023-04-28T14:26:00","guid":{"rendered":"https:\/\/new.vwdtest.com\/cz\/?page_id=829"},"modified":"2024-07-17T07:19:41","modified_gmt":"2024-07-17T07:19:41","slug":"i-live-with-vwd","status":"publish","type":"page","link":"https:\/\/vwdtest.com\/cz\/i-live-with-vwd\/","title":{"rendered":"\u017diju s vWch"},"content":{"rendered":"
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Jak\u00e9 jsou mo\u017enosti l\u00e9\u010dby von Willebrandovy choroby? Jak se jako rodi\u010d nejl\u00e9pe postar\u00e1m o sv\u00e9 d\u00edt\u011b s vWch? Jak najdu pro m\u011b nejlep\u0161\u00ed l\u00e9\u010dbu? Co znamen\u00e1 vWch pro m\u00e9 pl\u00e1nov\u00e1n\u00ed rodiny? VWch ovliv\u0148uje m\u016fj spole\u010densk\u00fd a rodinn\u00fd \u017eivot: co s t\u00edm mohu d\u011blat?<\/h5>\n<\/div>\n\n
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\u017divot s von Willebrandovou chorobou (vWch) je cesta<\/a> a na ni nejste sami. Bez ohledu na to, zda v\u00e1m byla vWch diagnostikov\u00e1na ned\u00e1vno nebo ji\u017e d\u00e1vno, ka\u017ed\u00fd krok va\u0161\u00ed cesty s vWch p\u0159in\u00e1\u0161\u00ed nov\u00e9 ot\u00e1zky. Zde v\u00e1m mohou pomoci prof. Corrales-Medina, prof. Berntorp a jejich kolegov\u00e9 zodpov\u00edd\u00e1n\u00edm n\u011bkter\u00fdch \u010dasto kladen\u00fdch ot\u00e1zek o nemoci, v\u010detn\u011b ot\u00e1zek o l\u00e9\u010db\u011b,<\/a> t\u011bhotenstv\u00ed a porod<\/a>u a du\u0161evn\u00edm zdrav\u00ed.<\/a> Najdete zde tak\u00e9 praktick\u00e9 tipy pro norm\u00e1ln\u00ed \u017eivot s vWch.<\/p>\n<\/div>\n\n

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L\u00e9\u010dba vWch<\/h2>\n<\/div>\n\n
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L\u00e9\u010dba vWch vy\u017eaduje \u00fazk\u00e9 partnerstv\u00ed mezi v\u00e1mi jako pacientem nebo rodi\u010dem pacienta a va\u0161\u00edm l\u00e9ka\u0159em. Spole\u010dn\u011b m\u016f\u017eete vytvo\u0159it individu\u00e1ln\u00ed l\u00e9\u010debn\u00fd pl\u00e1n, kter\u00fd zohledn\u00ed va\u0161e vlastn\u00ed jedine\u010dn\u00e9 pot\u0159eby a okolnosti. Individu\u00e1ln\u00ed pl\u00e1n l\u00e9\u010dby minimalizuje riziko krv\u00e1cen\u00ed a pom\u016f\u017ee v\u00e1m udr\u017eet nejlep\u0161\u00ed mo\u017enou kvalitu \u017eivota.

Pro v\u0161echny typy vWch existuj\u00ed \u00fa\u010dinn\u00e9 l\u00e9\u010dby. Volba l\u00e9\u010dby by m\u011bla b\u00fdt p\u0159izp\u016fsobena typu vWch, kter\u00fd m\u00e1te, z\u00e1va\u017enosti a typu krv\u00e1cen\u00ed, kter\u00e9 m\u00e1te, a tak\u00e9 jak\u00fdmkoli dal\u0161\u00edm zdravotn\u00edm stav\u016fm, kter\u00e9 m\u016f\u017eete m\u00edt. U v\u011bt\u0161iny lid\u00ed s vWch je l\u00e9\u010dba nutn\u00e1 pouze b\u011bhem chirurgick\u00e9ho z\u00e1kroku<\/a> nebo po zran\u011bn\u00ed. Lid\u00e9 s t\u011b\u017e\u0161\u00edmi formami vWch mohou vy\u017eadovat profylaktickou l\u00e9\u010dbu, aby se zabr\u00e1nilo krv\u00e1cen\u00ed. Pro \u0159\u00e1dnou l\u00e9\u010dbu je tak\u00e9 velmi d\u016fle\u017eit\u00e9, abyste sv\u00e9ho l\u00e9ka\u0159e informovali o v\u0161ech l\u00e9c\u00edch, kter\u00e9 u\u017e\u00edv\u00e1te, proto\u017ee n\u011bkter\u00e9 l\u00e9ky mohou naru\u0161ovat \u00fa\u010dinnost a bezpe\u010dnost l\u00e9\u010dby vWch. Obecn\u011b doporu\u010dujeme, abyste si nechali poradit, kter\u00e1 l\u00e9\u010dba je pro v\u00e1s nejvhodn\u011bj\u0161\u00ed v centru<\/a>, kter\u00e9 se specializuje na krv\u00e1civ\u00e1 onemocn\u011bn\u00ed.

\u017deny s vWch \u010dasto za\u017e\u00edvaj\u00ed siln\u00e9 menstrua\u010dn\u00ed krv\u00e1cen\u00ed<\/a> (SMK) a krv\u00e1cen\u00ed kolem t\u011bhotenstv\u00ed a porodu.<\/a> Mo\u017enosti l\u00e9\u010dby SMK zahrnuj\u00ed hormon\u00e1ln\u00ed terapii, jako je nitrod\u011blo\u017en\u00ed t\u011bl\u00edsko, kter\u00e9 m\u016f\u017ee n\u011bkdy sn\u00ed\u017eit menstrua\u010dn\u00ed krv\u00e1cen\u00ed. Pokud pl\u00e1nujete rodinu nebo jste t\u011bhotn\u00e1, doporu\u010dujeme se co nejd\u0159\u00edve poradit se sv\u00fdm l\u00e9ka\u0159em. Pro t\u011bhotn\u00e9 \u017eeny s vWch je k dispozici n\u011bkolik l\u00e9\u010debn\u00fdch postup\u016f. V\u00e1\u0161 l\u00e9ka\u0159 s v\u00e1mi vypracuje postup pro bezpe\u010dn\u00e9 a zdrav\u00e9 t\u011bhotenstv\u00ed a porod.

VWch m\u016f\u017ee tak\u00e9 ovlivnit du\u0161evn\u00ed pohodu<\/a>, soci\u00e1ln\u00ed interakce a kvalitu \u017eivota d\u011bt\u00ed i dosp\u011bl\u00fdch. P\u0159\u00edznaky jako SMK nebo krv\u00e1cen\u00ed do kloub\u016f jsou \u010dasto spojeny se zn\u00e1mkami deprese a \u00fazkosti. Rodi\u010de se \u010dasto ob\u00e1vaj\u00ed krv\u00e1cen\u00ed, kter\u00e9 mohou jejich d\u011bti potkat, a d\u011bti s vWch mohou m\u00edt kv\u016fli nemoci probl\u00e9my ve \u0161kole nebo p\u0159i hran\u00ed si s kamar\u00e1dy. K p\u0159ekon\u00e1n\u00ed t\u011bchto probl\u00e9m\u016f je d\u016fle\u017eit\u00e9, abyste m\u011bli oporu ve sv\u00e9m okol\u00ed a dost\u00e1vali adekv\u00e1tn\u00ed l\u00e9\u010dbu a dostatek informac\u00ed od l\u00e9ka\u0159\u016f ve va\u0161em l\u00e9\u010debn\u00e9m centru.<\/p>\n<\/div>\n\n\r\n\r\n\r\n\r\n

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Chirurgick\u00e1 operace
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U osob s von Willebrandovou chorobou (vWch<\/a>) je pravd\u011bpodobn\u011bj\u0161\u00ed, \u017ee budou m\u00edt nadm\u011brn\u00e9 krv\u00e1cen\u00ed b\u011bhem a po operaci<\/a>. I pacienti s relativn\u011b m\u00edrn\u00fdmi formami vWch hl\u00e1s\u00ed siln\u00e9 poopera\u010dn\u00ed krv\u00e1cen\u00ed, kter\u00e9 m\u016f\u017ee trvat po dlouhou dobu nebo se opakuj\u00ed.\u00a0Riziko krv\u00e1cen\u00ed nen\u00ed omezeno na velk\u00fd chirurgick\u00fd z\u00e1krok, krv\u00e1cen\u00ed m\u016f\u017ee nastat i po men\u0161\u00edch chirurgick\u00fdch z\u00e1kroc\u00edch, jako je extrakce zubu.<\/strong>\u00a0<\/sup>P\u0159i spr\u00e1vn\u00e9 l\u00e9\u010db\u011b ve spr\u00e1vn\u00fd \u010das v\u0161ak lze sn\u00ed\u017eit riziko nadm\u011brn\u00e9ho krv\u00e1cen\u00ed jak b\u011bhem operace, tak po n\u00ed.\u00a0<\/strong><\/p>\n

Pokud m\u00e1te vWch a pl\u00e1nujete operaci, je velmi d\u016fle\u017eit\u00e9, abyste si p\u0159ed operac\u00ed promluvili se sv\u00fdm zubn\u00edm l\u00e9ka\u0159em nebo chirurgem o sv\u00e9 nemoci. V\u00e1\u0161 l\u00e9ka\u0159 by pak m\u011bl vypracovat pl\u00e1n proveden\u00ed operace. Pl\u00e1n by m\u011bl b\u00fdt zalo\u017een na p\u0159esn\u00e9 diagn\u00f3ze podtypu a z\u00e1va\u017enosti vWch a na va\u0161\u00ed anamn\u00e9ze krv\u00e1cen\u00ed. Tyto informace umo\u017en\u00ed va\u0161emu l\u00e9ka\u0159i porozum\u011bt riziku krv\u00e1cen\u00ed b\u011bhem operace a po n\u00ed. Pl\u00e1n by m\u011bl tak\u00e9 zv\u00e1\u017eit typ chirurgick\u00e9ho z\u00e1kroku, kter\u00fd m\u00e1 b\u00fdt proveden, stejn\u011b jako jak\u00e9koli dal\u0161\u00ed nemoci a l\u00e9ky. Spole\u010dn\u011b jsou tyto informace nezbytn\u00e9 pro veden\u00ed l\u00e9\u010dby p\u0159ed, b\u011bhem a po operaci.<\/p>\n

Aby se minimalizovalo riziko krv\u00e1cen\u00ed b\u011bhem chirurgick\u00e9ho z\u00e1kroku, odborn\u00edci vyvinuli pokyny pro l\u00e9\u010dbu mal\u00fdch i velk\u00fdch chirurgick\u00fdch z\u00e1krok\u016f u osob s vWch. V z\u00e1vislosti na typu vWch a typu chirurgick\u00e9ho z\u00e1kroku tyto pokyny popisuj\u00ed, jakou l\u00e9\u010dbu byste m\u011bli podstoupit, aby se obnovila sr\u00e1\u017elivost krve a jak dlouho. Pro men\u0161\u00ed chirurgick\u00fd z\u00e1krok, jako je jednoduch\u00e1 extrakce zub\u016f, budete mo\u017en\u00e1 pot\u0159ebovat dost\u00e1vat l\u00e9\u010dbu po dobu a\u017e 5 dn\u016f. U velk\u00fdch chirurgick\u00fdch z\u00e1krok\u016f, jako je srde\u010dn\u00ed chirurgie, hysterektomie nebo kloubn\u00ed n\u00e1hrada, by l\u00e9\u010dba m\u011bla obnovit sr\u00e1\u017een\u00ed krve p\u0159ed operac\u00ed a alespo\u0148 3 dny po operaci, dokud riziko krv\u00e1cen\u00ed neodezn\u00ed. U n\u011bkter\u00fdch typ\u016f operac\u00ed, jako je n\u00e1hrada kolenn\u00edho kloubu u dosp\u011bl\u00fdch nebo tonzilektomie u d\u011bt\u00ed, m\u016f\u017ee trvat a\u017e 2 t\u00fddny, ne\u017e se riziko krv\u00e1cen\u00ed sn\u00ed\u017e\u00ed, a pl\u00e1n l\u00e9\u010dby by m\u011bl b\u00fdt odpov\u00eddaj\u00edc\u00edm zp\u016fsobem upraven.<\/p>\n

Nakonec byste si tak\u00e9 m\u011bli promluvit se svou zdravotn\u00ed sestrou nebo l\u00e9ka\u0159em o vWch, pokud pot\u0159ebujete injekci. Pod\u00e1n\u00ed injekce t\u011bsn\u011b pod k\u016f\u017ei m\u016f\u017ee pomoci vyhnout se bolestiv\u00e9mu krv\u00e1cen\u00ed do svalu, nap\u0159\u00edklad po o\u010dkov\u00e1n\u00ed.<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n

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T\u011bhotenstv\u00ed a porod
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I kdy\u017e m\u00e1te vWch, m\u016f\u017eete si napl\u00e1novat rodinu. P\u0159i vhodn\u00e9 l\u00e9ka\u0159sk\u00e9 p\u00e9\u010di m\u016f\u017ee t\u011bhotenstv\u00ed a porod prob\u00edhat bez komplikac\u00ed. Abyste se ujistila, \u017ee jste vy a va\u0161e d\u00edt\u011b v bezpe\u010d\u00ed, m\u011bla byste se poradit se sv\u00fdm l\u00e9ka\u0159em, pokud pl\u00e1nujete t\u011bhotenstv\u00ed nebo jste ji\u017e t\u011bhotn\u00e1. V\u00e1\u0161 l\u00e9ka\u0159 s v\u00e1mi probere rizika spojen\u00e1 s t\u011bhotenstv\u00edm, prenat\u00e1ln\u00edm testov\u00e1n\u00edm a porodem a pravd\u011bpodobnost\u00ed, \u017ee va\u0161e d\u00edt\u011b m\u016f\u017ee m\u00edt vWch. M\u016f\u017eete tak\u00e9 diskutovat o minul\u00fdch t\u011bhotenstv\u00edch, o sv\u00e9 osobn\u00ed a rodinn\u00e9 anamn\u00e9ze krv\u00e1cen\u00ed nebo o p\u0159\u00edpadn\u00e9m potratu, ke kter\u00e9mu u v\u00e1s mohlo doj\u00edt. Na z\u00e1klad\u011b va\u0161eho individu\u00e1ln\u00edho rizika krv\u00e1cen\u00ed pak v\u00e1\u0161 l\u00e9ka\u0159 napl\u00e1nuje bezpe\u010dn\u00e9 t\u011bhotenstv\u00ed a porod.<\/strong><\/p>\n

Takov\u00e9 pl\u00e1nov\u00e1n\u00ed je nezbytn\u00e9 pro \u017eeny s vWch, aby se minimalizovala jak\u00e1koli potenci\u00e1ln\u00ed rizika, kter\u00e1 se mohou vyskytnout b\u011bhem porodu a po n\u011bm. U zdrav\u00fdch \u017een se b\u011bhem t\u011bhotenstv\u00ed zvy\u0161uje hladina krevn\u00edch b\u00edlkovin naz\u00fdvan\u00fdch koagula\u010dn\u00ed faktory, aby byla budouc\u00ed matka chr\u00e1n\u011bna p\u0159ed nadm\u011brn\u00fdm krv\u00e1cen\u00edm b\u011bhem porodu a po n\u011bm. Ve srovn\u00e1n\u00ed se \u017eenami bez onemocn\u011bn\u00ed maj\u00ed \u017eeny s vWch b\u011bhem t\u011bhotenstv\u00ed \u010dasto ni\u017e\u0161\u00ed hladiny koagula\u010dn\u00edch faktor\u016f. Kv\u016fli m\u011bn\u00edc\u00edm se hladin\u00e1m koagula\u010dn\u00edch faktor\u016f by m\u011bla b\u00fdt krev t\u011bhotn\u00fdch \u017een s vWch pravideln\u011b sledov\u00e1na, zejm\u00e9na b\u011bhem t\u0159et\u00edho trimestru. Pokud jsou hladiny funk\u010dn\u00edch koagula\u010dn\u00edch faktor\u016f p\u0159\u00edli\u0161 n\u00edzk\u00e9, m\u011bla by b\u00fdt b\u011bhem porodu a po porodu pod\u00e1na dostate\u010dn\u00e1 profylaktick\u00e1 l\u00e9\u010dba. K dal\u0161\u00edmu omezen\u00ed rizika krv\u00e1cen\u00ed b\u011bhem porodu a po n\u011bm se v\u00e1\u0161 l\u00e9ka\u0159 m\u016f\u017ee rozhodnout spolupracovat se specializovan\u00fdm hematologem nebo v\u00e1m doporu\u010dit porod ve specializovan\u00e9 nemocnici.<\/p>\n

Je mo\u017en\u00e9, \u017ee va\u0161e nenarozen\u00e9 d\u00edt\u011b bude m\u00edt tak\u00e9 vWch. Zat\u00edmco v\u011bt\u0161ina miminek s vWch nem\u00e1 probl\u00e9my s krv\u00e1cen\u00edm b\u011bhem porodu, je d\u016fle\u017eit\u00e9 si tuto mo\u017enost uv\u011bdomit, aby bylo mo\u017en\u00e9 p\u0159ijmout nezbytn\u00e1 opat\u0159en\u00ed. Rodiny, v nich\u017e jeden z rodi\u010d\u016f trp\u00ed t\u011b\u017ekou formou vWch, by proto m\u011bly b\u00fdt informov\u00e1ny o rizic\u00edch vlastn\u00edho t\u011bhotenstv\u00ed a porodu.<\/p>\n

D\u016fle\u017eit\u00e9 je, \u017ee v\u0161echna tato rizika lze \u00fa\u010dinn\u011b zvl\u00e1dat spr\u00e1vn\u00fdm sledov\u00e1n\u00edm a l\u00e9\u010debn\u00fdm pl\u00e1nem p\u00e9\u010de o v\u00e1s a va\u0161e d\u00edt\u011b p\u0159ed, b\u011bhem a po porodu.<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n

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Du\u0161evn\u00ed zdrav\u00ed
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Porucha krv\u00e1cen\u00ed m\u016f\u017ee m\u00edt obrovsk\u00fd dopad na v\u00e1\u0161 \u017eivot. Riziko krv\u00e1cen\u00ed m\u016f\u017ee ovlivnit va\u0161e fyzick\u00e9 zdrav\u00ed, v\u00e1\u0161 emocion\u00e1ln\u00ed a du\u0161evn\u00ed stav, va\u0161e chov\u00e1n\u00ed, vztahy s rodinou a spole\u010densk\u00fd \u017eivot.<\/strong> P\u0159\u00edznaky mohou omezovat va\u0161e ka\u017edodenn\u00ed aktivity, v\u00e9st k obav\u00e1m z budoucnosti a tak\u00e9 k pocitu nejistoty ohledn\u011b intimn\u00edch vztah\u016f.\u00a0 Tato omezen\u00ed a obavy se \u010dasto dotknou i rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f. Dopad na kvalitu \u017eivota m\u016f\u017ee b\u00fdt je\u0161t\u011b v\u00fdrazn\u011bj\u0161\u00ed, pokud nen\u00ed krv\u00e1civ\u00e1 porucha diagnostikov\u00e1na, jak se bohu\u017eel \u010dasto st\u00e1v\u00e1 u <\/strong>von Willebrandovy choroby<\/strong><\/a> (vWch).<\/strong> Lid\u00e9 s nediagnostikovanou vWch nemaj\u00ed p\u0159\u00edstup k vhodn\u00e9 l\u00e9\u010db\u011b. Bez podpory ze sv\u00e9ho okol\u00ed pacienti s vWch \u010dasto vykazuj\u00ed zn\u00e1mky \u00fazkosti a deprese.<\/strong> I po stanoven\u00ed diagn\u00f3zy je d\u016fle\u017eit\u00e9 si uv\u011bdomit, \u017ee vWch z\u016fst\u00e1v\u00e1 pro pacienty celo\u017eivotn\u00edm onemocn\u011bn\u00edm s p\u0159etrv\u00e1vaj\u00edc\u00edmi probl\u00e9my pro jejich rodiny a jejich prost\u0159ed\u00ed.<\/strong><\/p>\n

Rodi\u010dovstv\u00ed p\u0159in\u00e1\u0161\u00ed lidem s vWch jedine\u010dn\u00e9 v\u00fdzvy. VWch a dal\u0161\u00ed krv\u00e1civ\u00e9 poruchy jsou d\u011bdi\u010dn\u00e1 onemocn\u011bn\u00ed a diagn\u00f3za m\u016f\u017ee m\u00edt v\u00e1\u017en\u00fd dopad na pl\u00e1nov\u00e1n\u00ed rodiny. Jako rodi\u010de d\u00edt\u011bte s poruchou krevn\u00ed sr\u00e1\u017elivosti m\u016f\u017eete za\u017e\u00edt pocity viny a sebeobvi\u0148ov\u00e1n\u00ed z nemoci sv\u00e9ho d\u00edt\u011bte. Nav\u00edc strach z krv\u00e1cen\u00ed m\u016f\u017ee zp\u016fsobit, \u017ee se budete v\u016f\u010di sv\u00e9mu d\u00edt\u011bti c\u00edtit p\u0159ehnan\u011b ochranitelsky a omez\u00edte jeho spole\u010densk\u00e9 nebo sportovn\u00ed aktivity. Jak\u00e1koli ochrann\u00e1 opat\u0159en\u00ed v\u0161ak mus\u00ed b\u00fdt v rovnov\u00e1ze se svobodou d\u011bt\u00ed budov\u00e1n\u00edm sebev\u011bdom\u00ed, co\u017e je d\u016fle\u017eit\u00e9 pro v\u00fdvoj va\u0161eho d\u00edt\u011bte. Kombinace jednoduch\u00fdch ochrann\u00fdch opat\u0159en\u00ed, v\u00fdb\u011br vhodn\u00fdch aktivit a snadn\u00fd p\u0159\u00edstup k \u00fa\u010dinn\u00e9 l\u00e9\u010db\u011b v\u00e1m m\u016f\u017ee pomoci naj\u00edt tuto rovnov\u00e1hu.<\/p>\n

Obzvl\u00e1\u0161t\u011b n\u00e1ro\u010dn\u00e9 obdob\u00ed pro osoby s vWch m\u016f\u017ee b\u00fdt dosp\u00edv\u00e1n\u00ed.<\/p>\n

Jakmile p\u0159evezmete v\u011bt\u0161\u00ed odpov\u011bdnost za l\u00e9\u010dbu sv\u00e9 poruchy krevn\u00edho sr\u00e1\u017een\u00ed, je velmi d\u016fle\u017eit\u00e9, abyste tuto svoji l\u00e9\u010dbu<\/a> dodr\u017eovali. Dostanete-li svou nemoc pod kontrolu, nejen\u017ee sn\u00ed\u017e\u00edte riziko krv\u00e1cen\u00ed a bolesti, ale tak\u00e9 z\u00edsk\u00e1te d\u016fv\u011bru ve sv\u00e9 schopnosti a pom\u016f\u017eete si udr\u017eet dobr\u00e9 du\u0161evn\u00ed zdrav\u00ed a neporu\u0161en\u00fd spole\u010densk\u00fd \u017eivot. Du\u0161evn\u00ed zdrav\u00ed a kvalita \u017eivota \u017een s poruchami krv\u00e1cen\u00ed je \u010dasto siln\u011b ovlivn\u011bna jejich onemocn\u011bn\u00edm. Pokud m\u00e1te vWch, je velmi vysok\u00e1 pravd\u011bpodobnost, \u017ee tak\u00e9 za\u017eijete siln\u00e9 menstrua\u010dn\u00ed krv\u00e1cen\u00ed<\/a> (SMK). Ztr\u00e1ta krve a k\u0159e\u010de prov\u00e1zej\u00edc\u00ed menstruaci mohou siln\u011b naru\u0161ovat ka\u017edodenn\u00ed \u017eivot, sport a jin\u00e9 fyzick\u00e9 aktivity a soci\u00e1ln\u00ed a mezilidsk\u00e9 interakce. SMK \u010dasto tak\u00e9 vede k zame\u0161k\u00e1v\u00e1n\u00ed \u0161koly nebo omezen\u00ed \u010di absenci v pr\u00e1ci. Bohu\u017eel se SMK \u010dasto setk\u00e1v\u00e1 s propou\u0161t\u011bn\u00edm a stigmatizac\u00ed. Kv\u016fli t\u011bmto omezen\u00edm v aktivit\u00e1ch a interakc\u00edch a nedostatku uzn\u00e1n\u00ed mohou b\u00fdt \u017eeny s vWch \u010dasto stigmatizov\u00e1ny vlivem na du\u0161evn\u00ed zdrav\u00ed s pocity izolace, ztr\u00e1ty \u00fasp\u011bchu a \u0161patn\u00e9 n\u00e1lady. D\u016fle\u017eit\u00e9 je, \u017ee SMK lze l\u00e9\u010dit a l\u00e9\u010dba m\u016f\u017ee zlep\u0161it kvalitu \u017eivota \u017een s vWch a SMK.<\/p>\n

Jedn\u00edm z kl\u00ed\u010d\u016f k omezen\u00ed du\u0161evn\u00edho a soci\u00e1ln\u00edho dopadu va\u0161\u00ed krv\u00e1civ\u00e9 poruchy je siln\u00e1 podpora ve va\u0161em okol\u00ed. To m\u016f\u017ee zahrnovat va\u0161i rodinu a p\u0159\u00e1tele, stejn\u011b jako soci\u00e1ln\u00ed slu\u017eby a poskytovatele zdravotn\u00ed p\u00e9\u010de. Pokud se c\u00edt\u00edte omezen\u011b, \u00fazkostn\u011b nebo depresivn\u011b, promluvte si o sv\u00fdch pocitech tak\u00e9 se sv\u00fdm l\u00e9ka\u0159em nebo specialisty ve va\u0161em l\u00e9\u010debn\u00e9m centru. Budou v\u00e1s moci podporovat a v\u00e9st v\u00e1s k mnoha u\u017eite\u010dn\u00fdm postup\u016fm, kter\u00e9 odborn\u00edci vyvinuli na ochranu du\u0161evn\u00edho zdrav\u00ed osob s poruchami krevn\u00ed sr\u00e1\u017elivosti. Zdravotni\u010dt\u00ed pracovn\u00edci v\u00e1m tak\u00e9 mohou pomoci naj\u00edt psychology a poradce, kte\u0159\u00ed maj\u00ed zku\u0161enosti s prac\u00ed s lidmi s krv\u00e1civ\u00fdmi poruchami. D\u016frazn\u011b tak\u00e9 doporu\u010dujeme, abyste se obr\u00e1tili na pacientskou organizaci. Zde m\u016f\u017eete diskutovat o sv\u00fdch zku\u0161enostech, emoc\u00edch a o\u010dek\u00e1v\u00e1n\u00edch kolem vWch a z\u00edskat praktick\u00e9 rady od dal\u0161\u00edch pacient\u016f. VWch je vz\u00e1cn\u00e9 onemocn\u011bn\u00ed, ale nejste sami a pomoc je na dosah ruky.<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n

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<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

Jak\u00e9 jsou mo\u017enosti l\u00e9\u010dby von Willebrandovy choroby? Jak se jako rodi\u010d nejl\u00e9pe postar\u00e1m o sv\u00e9 d\u00edt\u011b s vWch? Jak najdu pro m\u011b nejlep\u0161\u00ed l\u00e9\u010dbu? Co znamen\u00e1 vWch pro m\u00e9 pl\u00e1nov\u00e1n\u00ed rodiny? VWch ovliv\u0148uje m\u016fj spole\u010densk\u00fd a rodinn\u00fd \u017eivot: co s t\u00edm mohu d\u011blat? \u017divot s von Willebrandovou chorobou (vWch) je cesta a na ni nejste sami. Bez […]<\/p>\n","protected":false},"author":1,"featured_media":1648,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false},"acf":[],"yoast_head":"\n\u017diju s vWch - Czech Republic<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vwdtest.com\/cz\/i-live-with-vwd\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u017diju s vWch - Czech Republic\" \/>\n<meta property=\"og:description\" content=\"Jak\u00e9 jsou mo\u017enosti l\u00e9\u010dby von Willebrandovy choroby? Jak se jako rodi\u010d nejl\u00e9pe postar\u00e1m o sv\u00e9 d\u00edt\u011b s vWch? Jak najdu pro m\u011b nejlep\u0161\u00ed l\u00e9\u010dbu? Co znamen\u00e1 vWch pro m\u00e9 pl\u00e1nov\u00e1n\u00ed rodiny? VWch ovliv\u0148uje m\u016fj spole\u010densk\u00fd a rodinn\u00fd \u017eivot: co s t\u00edm mohu d\u011blat? \u017divot s von Willebrandovou chorobou (vWch) je cesta a na ni nejste sami. 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Jak se jako rodi\u010d nejl\u00e9pe postar\u00e1m o sv\u00e9 d\u00edt\u011b s vWch? Jak najdu pro m\u011b nejlep\u0161\u00ed l\u00e9\u010dbu? Co znamen\u00e1 vWch pro m\u00e9 pl\u00e1nov\u00e1n\u00ed rodiny? VWch ovliv\u0148uje m\u016fj spole\u010densk\u00fd a rodinn\u00fd \u017eivot: co s t\u00edm mohu d\u011blat? \u017divot s von Willebrandovou chorobou (vWch) je cesta a na ni nejste sami. 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