Welcome to the VWDtest.com bleeding assessment tool.

DISCLAIMER:

PLEASE NOTE: This questionnaire is a scientifically validated tool1 adapted by Professor Erik Berntorp. It can be used to detect if a bleeding disorder may be present. It is intended for informational purposes only and to support a conversation with a qualified, licensed healthcare professional. It is in no way intended to be a substitute for professional medical advice and judgement. You should consult with your doctor or healthcare professional should you have questions or concerns concerning the results of this test.

PERSONAL DATA: Before taking this test, we wish to make you aware of the following information concerning your privacy:

  • The answers that you provide in this test are used to create a risk score for von Willebrand disease (VWD)
  • The data that you enter into this form will also be stored and used by Octapharma AG for statistical purposes only concerning VWD prevalence, and will only concern such data as is relevant and adequate for this purpose
  • At no time will you be asked to provide any data that renders you personally identifiable
  • The user ID that is entered by ‘returning visitors’ only enables a second assessment taken to be directly linked to a first assessment previously taken. The form structure of the second assessment is identical to the first assessment. At no point will the user be personally identifiable

For more information please consult the data privacy statement.

1. ISTH/SSC bleeding assessment tool: a standardized questionnaire and a proposal for a new bleeding score for inherited bleeding disorders.
Rodeghiero F, Tosetto A, Abshire T, Arnold DM, Coller B, James P, Neunert C, Lillicrap D; ISTH/SSC joint VWF and Perinatal/Pediatric Hemostasis Subcommittees Working Group. J Thromb Haemost. 2010 Sep;8(9):2063-5

Sex
Your age

Please enter a number between 1 and 100

Country/Region

Country

Region

Family history of bleeding disorders

Have any members of your immediate family* been diagnosed with a bleeding disorder?

*Parents, siblings or children

Step {{questionIndex+1}}/{{questions.length}}

Thank you for completing the vwdtest.com bleeding assessment.

  • Your sex: {{userInformation.sex}}
  • Your age: {{userInformation.age}}
  • Family history of bleeding: {{userInformation.familyHistory}}
  • Your country/region: {{userInformation.country}} / {{userInformation.region}}
  • Your bleeding score: {{nbPointsAnswers}}
  • Normal range: 0-3

Your bleeding score is abnormal

Your bleeding score is normal

Your bleeding score is within the normal range.
If you are concerned that you have a bleeding disorder you should consult your doctor.

User ID: {{assessmentId}}

Your bleeding score indicates that you may have a bleeding disorder. However, this test is not a replacement for a complete assessment by a trained healthcare professional, and further information would be needed to make a proper diagnosis.

Please follow the steps below to ensure a full diagnosis.

Centers recommended for following up on the results with a von Willebrand specialist near your current location.

This letter is addressed to Health Care Professionals

Dear Colleagues,

My name is Erik Berntorp and I am a Professor in Haematology and Coagulation Disorders at Lund University in Sweden. As you may be aware, von Willebrand disease (VWD) is the most common bleeding disorder (affecting up to 1% of the world’s population) yet is still highly underdiagnosed. Together with other colleagues we have developed the VWDtest.com online platform, with the aim of improving the diagnosis of VWD. At the VWDtest.com website, users can complete a simple five-minute questionnaire to evaluate whether they may have a bleeding disorder or not.

In this case, the questionnaire has indicated that the user may have a bleeding disorder. We are here to help you identifying whether this person is affected by VWD. The support we provide includes advice on VWD diagnosis from world-leading experts as well as blood and plasma sample analysis in state of the art laboratories. These services are free of charge if the procedures below are strictly followed.

I hope you will benefit from the support of the VWDtest.com team and help us facilitating accurate VWD diagnosis.

How to proceed

- Following an abnormal bleeding test score, the individual has been asked to repeat the online bleeding questionnaire with their General Practitioner/Primary Care physician (GP/PCP). If this is you, please jump to the section “For GP/PCP” below.

- If the bleeding test results were similar when the test was repeated, the GP/PCP has been asked to refer the patient to a haematologist. If this is you, please jump to the section “For the haematologist” below.

For the GP/PCP

Please repeat the bleeding questionnaire together with your patient using the user ID (on the top right on the bleeding questionnaire results). Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

In case the bleeding score of your patient is 4 or above, please refer them to a haematologist. Please ensure that the haematologist is provided with the bleeding questionnaire results and informed about the purpose of this investigation.

In case the score is 3 or below, the patient does not need further investigation.

For the haematologist

Before contacting the VWD expert team, please execute the following blood tests:

  • Complete blood count
  • Activated partial thromboplastin time (APTT)
  • Prothrombin time (PT)
  • Fibrinogen
  • Platelet function assay (PFA)

Abnormalities in the above mentioned laboratory tests, together with a clinical anamnestic patient data could give a sign for VWD. You have the possibility to contact and discuss your patient condition with our VWD expert team.

After having performed these blood tests, please contact the VWD expert team:

If you have any clinical questions about VWD, please send an email to Dr. Fernando Corrales (ffc5@med.miami.edu) if you are located in the continent of America and to Prof. Erik Berntorp (erik.berntorp@med.lu.se) if you are located anywhere else in the world stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

For a free sample analysis service (this service is not available in the United States) helping you to diagnose VWD, please send an email to Dr. Anna Pavlova (Anna.Pavlova@ukbonn.de) stating your name, affiliation contact details and question(s). Please share the results from the bleeding questionnaire and blood tests.

Again, please don’t share more patient’s personal data than necessary for this purpose and please always adhere to the applicable data protection laws and regulations.

Your email will be processed by the respective VWD expert, who will reply to you shortly. If you and the VWD expert team decide that further diagnostic tests are necessary, you may be asked to submit blood and plasma samples from your patient for analysis (detailed information on how to submit the samples will be provided to you). The submitted samples will undergo several tests, which may include: von Willebrand factor (VWF) antigen and activity levels, FVIII activity, VWF multimer analysis, and FVIII-binding assays. These tests will confirm or exclude whether the patient has VWD. In addition, if a VWD diagnosis is made, next-generation sequencing will be carried out to look for possible causative variations in the VWF gene.

This sample analysis service is free of charge, but only available upon explicit written request by a member of the VWD expert team. Any unsolicited sample submissions will be disregarded.

Support and advice on diagnosis and management options will continue to be available from the VWD expert team, free of charge, after the sample analysis results have been provided.

Yours sincerely,

Professor Erik Berntorp