{"id":829,"date":"2023-04-28T14:26:00","date_gmt":"2023-04-28T14:26:00","guid":{"rendered":"https:\/\/new.vwdtest.com\/az\/?page_id=829"},"modified":"2026-04-05T15:28:10","modified_gmt":"2026-04-05T15:28:10","slug":"vwd-il%c9%99-yasayiram","status":"publish","type":"page","link":"https:\/\/vwdtest.com\/az\/vwd-il%c9%99-yasayiram\/","title":{"rendered":"M\u0259n FVX il\u0259 ya\u015fay\u0131ram"},"content":{"rendered":"
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Fon Villebrand x\u0259st\u0259liyinin (FVX) m\u00fcalic\u0259 variantlar\u0131 hans\u0131lard\u0131r? Valideyn olaraq, FVX-li u\u015fa\u011f\u0131ma \u0259n yax\u015f\u0131 \u015f\u0259kild\u0259 nec\u0259 qulluq ed\u0259 bil\u0259r\u0259m? \u00d6z\u00fcm \u00fc\u00e7\u00fcn \u0259n uy\u011fun m\u00fcalic\u0259ni nec\u0259 tapa bil\u0259r\u0259m? FVX ail\u0259 planlamas\u0131 bax\u0131m\u0131ndan n\u0259 dem\u0259kdir? FVX sosial v\u0259 ail\u0259 h\u0259yat\u0131na nec\u0259 t\u0259sir edir v\u0259 bu hallarda n\u0259 etm\u0259k olar?<\/h5>\n<\/div>\n\n
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Fon Villebrand x\u0259st\u0259liyi (FVX) il\u0259 ya\u015famaq bir s\u0259yah\u0259tdir <\/a>v\u0259 siz t\u0259k deyilsiniz. Bu yax\u0131nlarda FVX diaqnozu qoyulubsa v\u0259 ya \u00e7oxdan diaqnoz qoyulubsa, FVX il\u0259 s\u0259yah\u0259tinizin h\u0259r add\u0131m\u0131 yeni suallar do\u011furur. Burada Prof. Corrales-Medina, Prof. Bernthorp v\u0259 h\u0259mkarlar\u0131 m\u00fcalic\u0259, hamil\u0259lik v\u0259 do\u011fu\u015f<\/a>, psixoloji durum<\/a> da daxil olmaqla x\u0259st\u0259likl\u0259 ba\u011fl\u0131 tez-tez veril\u0259n b\u0259zi suallar\u0131 cavabland\u0131raraq siz\u0259 d\u0259st\u0259k olurlar. H\u0259m\u00e7inin FWD il\u0259 normal h\u0259yat \u00fc\u00e7\u00fcn praktik m\u0259sl\u0259h\u0259tl\u0259r d\u0259 tapa bil\u0259rsiniz.<\/p>\n<\/div>\n\n

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FVX x\u0259st\u0259liyinin idar\u0259 olunmas\u0131<\/h2>\n<\/div>\n\n
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FVX-nin idar\u0259 olunmas\u0131 sizin v\u0259 ya x\u0259st\u0259nin valideyni olaraq h\u0259kiminiz aras\u0131nda s\u0131x t\u0259r\u0259fda\u015fl\u0131q t\u0259l\u0259b edir. Birlikd\u0259 \u00f6z unikal ehtiyaclar\u0131n\u0131z\u0131 v\u0259 v\u0259ziyy\u0259tl\u0259rinizi n\u0259z\u0259r\u0259 alan f\u0259rdil\u0259\u015fdirilmi\u015f m\u00fcalic\u0259 plan\u0131 haz\u0131rlaya bil\u0259rsiniz. F\u0259rdil\u0259\u015fdirilmi\u015f idar\u0259etm\u0259 plan\u0131 qanaxma riskini minimuma endir\u0259c\u0259k v\u0259 m\u00fcmk\u00fcn olan \u0259n yax\u015f\u0131 h\u0259yat keyfiyy\u0259tini qoruma\u011fa k\u00f6m\u0259k ed\u0259c\u0259k.1<\/sup>

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\nTreatments for VWD<\/h2>

There are effective treatments for all types of VWD. Treatment choice should be tailored to the type of VWD you have, the severity and type of bleeding you have, as well as any other health conditions you may have. For most people with VWD, treatment is only needed during surgery<\/a> or after trauma. People with more severe forms of VWD may require prophylactic treatment to prevent bleeding. To receive proper treatment, is it also very important that you inform you doctor about any medication you are taking because some drugs may interfere with the effectiveness and safety of VWD treatments. Generally, we recommend that you receive advice about which treatment is most suitable for you from a centre<\/a> that specialises in bleeding disorders.1<\/sup>

Desmopressin<\/b> is the first-line treatment for most patients. Desmopressin stimulates the release of stored clotting factors and is often used to treat type 1 and some type 2 VWD patients, but not patients with type 3 VWD. It raises VWF levels to help blood clotting. Desmopressin is often used to control bleeding during minor surgery<\/a> or after trauma, but it is not suitable for all patients or during major surgery.1<\/sup>

Replacement therapy with VWF-containing concentrates <\/b>is used when desmopressin is ineffective or not indicated. These concentrates replace the VWF that is missing in your blood or does not work properly to help control bleeding. People with certain types of VWD or people with severe bleeding symptoms are most likely to use VWF-containing concentrates. If you experience severe or frequent bleeding episodes, you may also benefit from regular prophylactic treatment with VWF-containing concentrates to prevent bleeding.1<\/sup>

In some scenarios, and in particular for patients with type 1 VWD, antifibrinolytic medications<\/b> such as tranexamic acid are commonly used. These drugs slow the breakdown of blood clots, and are suggested for minor surgery, dental procedures, and to treat heavy periods and bleeding after childbirth. Fibrin glue can be also useful to seal a bleeding site, for instance after a tooth extraction. Whenever possible, the use of all these medications should be planned in advance and be part of a tailored treatment plan.1<\/sup>

Women with VWD often experience heavy menstrual bleeding<\/a> (HMB) and bleeding around pregnancy and childbirth.<\/a> Management options for HMB include hormonal therapies such as an intrauterine device that can sometimes reduce menstrual bleeding. If you are planning a family or are pregnant, we recommend that you consult your doctor as soon as possible. There are several treatments available for pregnant women with VWD. Your doctor will develop a management plan with you for a safe and healthy pregnancy and delivery.1<\/sup>

VWD may also affect the mental well-being<\/a>, social interactions and quality of life of both children and adults.2-5 <\/sup>Symptoms such as HMB or joint bleeds are often associated with signs of depression and anxiety.2<\/sup> Parents often worry about bleeding their children may experience, and children with VWD may be faced with problems at school or playing with friends because of the disease.5<\/sup> To overcome these challenges, it is important that you have a strong social network and receive the right treatment and education from the doctors at your treatment centre.2,3<\/sup><\/p>\n<\/div>\n\n\r\n\r\n\r\n\r\n

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C\u0259rrahiyy\u0259
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Fon Villebrand x\u0259st\u0259liyi (VWD)<\/a> olan insanlarda \u0259m\u0259liyyat zaman\u0131 v\u0259 sonras\u0131nda h\u0259ddind\u0259n art\u0131q qanaxma ehtimal\u0131 daha y\u00fcks\u0259kdir<\/a>.1 H\u0259tta nisb\u0259t\u0259n y\u00fcng\u00fcl VVD formalar\u0131 olan x\u0259st\u0259l\u0259r bel\u0259 uzun m\u00fcdd\u0259t davam ed\u0259 v\u0259 ya t\u0259krarlana bil\u0259n a\u011f\u0131r \u0259m\u0259liyyat sonras\u0131 qanaxma bar\u0259d\u0259 m\u0259lumat verirl\u0259r.1 Qanaxma riski yaln\u0131z b\u00f6y\u00fck \u0259m\u0259liyyatla m\u0259hdudla\u015fm\u0131r, qanaxma di\u015f \u00e7\u0259kilm\u0259si kimi ki\u00e7ik c\u0259rrahi prosedurlardan sonra da ba\u015f ver\u0259 bil\u0259r.2 Lakin, d\u00fczg\u00fcn vaxtda d\u00fczg\u00fcn m\u00fcalic\u0259 il\u0259 h\u0259ddind\u0259n art\u0131q qanaxma riski h\u0259m \u0259m\u0259liyyat zaman\u0131, h\u0259m d\u0259 \u0259m\u0259liyyatdan sonra azald\u0131la bil\u0259r. 3,4<\/strong><\/p>\n

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\u018fg\u0259r sizd\u0259 VWD varsa v\u0259 \u0259m\u0259liyyat planla\u015fd\u0131r\u0131rs\u0131n\u0131zsa, \u0259m\u0259liyyatdan \u0259vv\u0259l x\u0259st\u0259liyiniz bar\u0259d\u0259 di\u015f h\u0259kimi v\u0259 ya c\u0259rrah\u0131n\u0131zla dan\u0131\u015fma\u011f\u0131n\u0131z \u00e7ox vacibdir. Daha sonra h\u0259kiminiz \u0259m\u0259liyyatla ba\u011fl\u0131 bir idar\u0259etm\u0259 plan\u0131 haz\u0131rlamal\u0131d\u0131r. Plan VWD-nin alt tipinin v\u0259 \u015fidd\u0259tinin d\u0259qiq diaqnozuna v\u0259 qanaxma tarix\u00e7\u0259niz\u0259 \u0259saslanmal\u0131d\u0131r. Bu m\u0259lumat h\u0259kiminiz\u0259 \u0259m\u0259liyyat zaman\u0131 v\u0259 sonras\u0131nda qanaxma riskinizi anlama\u011fa imkan ver\u0259c\u0259kdir. Plan h\u0259m\u00e7inin apar\u0131lacaq \u0259m\u0259liyyat n\u00f6v\u00fcn\u00fc, el\u0259c\u0259 d\u0259 dig\u0259r x\u0259st\u0259likl\u0259ri v\u0259 d\u0259rmanlar\u0131 n\u0259z\u0259r\u0259 almal\u0131d\u0131r. Bu m\u0259lumat birlikd\u0259 \u0259m\u0259liyyatdan \u0259vv\u0259l, \u0259m\u0259liyyat zaman\u0131 v\u0259 sonras\u0131nda m\u00fcalic\u0259y\u0259 r\u0259hb\u0259rlik etm\u0259k \u00fc\u00e7\u00fcn vacibdir.1,2,4<\/p>\n

\u018fm\u0259liyyat zaman\u0131 qanaxma riskini minimuma endirm\u0259k \u00fc\u00e7\u00fcn m\u00fct\u0259x\u0259ssisl\u0259r VWD olan insanlarda h\u0259m ki\u00e7ik, h\u0259m d\u0259 b\u00f6y\u00fck \u0259m\u0259liyyat \u00fc\u00e7\u00fcn m\u00fcalic\u0259 qaydalar\u0131 haz\u0131rlam\u0131\u015flar. VWD n\u00f6v\u00fcnd\u0259n v\u0259 \u0259m\u0259liyyat n\u00f6v\u00fcnd\u0259n as\u0131l\u0131 olaraq, bu t\u0259limatlar qan laxtalanmas\u0131n\u0131 b\u0259rpa etm\u0259k \u00fc\u00e7\u00fcn hans\u0131 m\u00fcalic\u0259ni v\u0259 n\u0259 q\u0259d\u0259r m\u00fcdd\u0259t\u0259 almal\u0131 oldu\u011funuzu t\u0259svir edir.3 Sad\u0259 di\u015f \u00e7\u0131xar\u0131lmas\u0131 kimi ki\u00e7ik c\u0259rrahiyy\u0259 \u0259m\u0259liyyatlar\u0131 \u00fc\u00e7\u00fcn 5 g\u00fcn\u0259 q\u0259d\u0259r m\u00fcalic\u0259 alma\u011f\u0131n\u0131z laz\u0131m ola bil\u0259r.4 \u00dcr\u0259k c\u0259rrahiyy\u0259si, histerektomiya v\u0259 ya oynaq protezi kimi b\u00f6y\u00fck c\u0259rrahiyy\u0259 \u0259m\u0259liyyatlar\u0131 \u00fc\u00e7\u00fcn m\u00fcalic\u0259 qan laxtalanmas\u0131n\u0131 \u0259m\u0259liyyatdan \u0259vv\u0259l v\u0259 \u0259m\u0259liyyatdan sonra \u0259n az\u0131 3 g\u00fcn \u0259rzind\u0259 qan laxtalanmas\u0131n\u0131 b\u0259rpa etm\u0259lidir, bu da qanaxma riski azalana q\u0259d\u0259r davam etm\u0259lidir.3 Yetkinl\u0259rd\u0259 diz protezi \u0259m\u0259liyyat\u0131 v\u0259 ya u\u015faqlarda tonzillektomiya kimi b\u0259zi c\u0259rrahiyy\u0259 n\u00f6vl\u0259ri \u00fc\u00e7\u00fcn qanaxma riskinin azalmas\u0131 2 h\u0259ft\u0259y\u0259 q\u0259d\u0259r \u00e7\u0259k\u0259 bil\u0259r v\u0259 idar\u0259etm\u0259 plan\u0131 m\u00fcvafiq olaraq t\u0259nziml\u0259nm\u0259lidir.4,5<\/p>\n

N\u0259hay\u0259t, \u0259g\u0259r siz\u0259 iyn\u0259 laz\u0131md\u0131rsa, VWD bar\u0259d\u0259 tibb bac\u0131n\u0131z v\u0259 ya h\u0259kiminizl\u0259 d\u0259 dan\u0131\u015fmal\u0131s\u0131n\u0131z. D\u0259rinin alt\u0131na iyn\u0259 vurmaq, m\u0259s\u0259l\u0259n, peyv\u0259ndd\u0259n sonra \u0259z\u0259l\u0259y\u0259 a\u011fr\u0131l\u0131 qanaxman\u0131n qar\u015f\u0131s\u0131n\u0131 alma\u011fa k\u00f6m\u0259k ed\u0259 bil\u0259r.2<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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References<\/h5>\r\n\t\t\t\t\t\t\t

1. Corrales-Medina FF et al. Blood Rev<\/em> 2022; 101018.
\n2. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/<\/a>;son giri\u015f tarixi: Mart 2023.
\n3. Connell NT et al. \u00a0Qan Nailiyy\u0259tl\u0259ri\u00a02021; 5:301-25.
\n4. O\u2019Donnell JS & Lavin M, Hematology<\/em> Am Soc Hematol Educ Program<\/em> 2019; 604\u2013609.
\n5. Patel PN et al. Int J Pediatr Otorhinolaryngol<\/em> 2017; 100:216-222.<\/p>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n

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Hamil\u0259lik v\u0259 do\u011fu\u015f
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\u018fg\u0259r sizd\u0259 fon Villebrand x\u0259st\u0259liyi<\/a> (VWD) varsa, ail\u0259 planlaya bil\u0259rsiniz. M\u00fcvafiq tibbi yard\u0131mla u\u011furlu hamil\u0259lik v\u0259 sa\u011flam bir k\u00f6rp\u0259 g\u00f6zl\u0259y\u0259 bil\u0259rsiniz. Hamil\u0259lik planla\u015fd\u0131r\u0131rs\u0131n\u0131zsa v\u0259 ya art\u0131q hamil\u0259sinizs\u0259, \u00f6z\u00fcn\u00fcz\u00fcn v\u0259 k\u00f6rp\u0259nizin t\u0259hl\u00fck\u0259sizliyind\u0259n \u0259min olmaq \u00fc\u00e7\u00fcn h\u0259kiminizl\u0259 dan\u0131\u015fmal\u0131s\u0131n\u0131z. H\u0259kiminiz sizinl\u0259 hamil\u0259lik, prenatal test v\u0259 do\u011fu\u015fla ba\u011fl\u0131 riskl\u0259ri v\u0259 u\u015fa\u011f\u0131n\u0131z\u0131n VWD olma ehtimal\u0131n\u0131 m\u00fczakir\u0259 ed\u0259c\u0259k. H\u0259m\u00e7inin ke\u00e7mi\u015f hamil\u0259likl\u0259rinizi, \u015f\u0259xsi v\u0259 ail\u0259nizin qanaxma tarix\u00e7\u0259sini v\u0259 ya ba\u015f ver\u0259 bil\u0259c\u0259k h\u0259r hans\u0131 bir d\u00fc\u015f\u00fck hal\u0131n\u0131 m\u00fczakir\u0259 ed\u0259 bil\u0259rsiniz. F\u0259rdi qanaxma riskiniz\u0259 \u0259sas\u0259n, h\u0259kiminiz t\u0259hl\u00fck\u0259siz hamil\u0259lik v\u0259 do\u011fu\u015f \u00fc\u00e7\u00fcn planlar haz\u0131rlayacaq.1-3<\/strong><\/p>\n

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Do\u011fu\u015f zaman\u0131 v\u0259 sonras\u0131nda ba\u015f ver\u0259 bil\u0259c\u0259k potensial riskl\u0259ri minimuma endirm\u0259k \u00fc\u00e7\u00fcn VWD olan qad\u0131nlar \u00fc\u00e7\u00fcn bel\u0259 bir planla\u015fd\u0131rma vacibdir. Sa\u011flam qad\u0131nlarda, hamil\u0259lik d\u00f6vr\u00fcnd\u0259 laxtalanma faktorlar\u0131 adlanan qan z\u00fclallar\u0131n\u0131n s\u0259viyy\u0259si y\u00fcks\u0259lir v\u0259 bu da g\u0259l\u0259c\u0259k anan\u0131 do\u011fu\u015f zaman\u0131 v\u0259 sonras\u0131nda h\u0259ddind\u0259n art\u0131q qanaxmadan qoruyur. X\u0259st\u0259liyi olmayan qad\u0131nlarla m\u00fcqayis\u0259d\u0259, VWD olan qad\u0131nlarda hamil\u0259lik d\u00f6vr\u00fcnd\u0259 laxtalanma faktorlar\u0131n\u0131n s\u0259viyy\u0259si tez-tez a\u015fa\u011f\u0131 olur. Laxtalanma faktorlar\u0131n\u0131n d\u0259yi\u015f\u0259n s\u0259viyy\u0259l\u0259rin\u0259 g\u00f6r\u0259, VWD olan hamil\u0259 qad\u0131nlar\u0131n qan\u0131, x\u00fcsus\u0259n d\u0259 \u00fc\u00e7\u00fcnc\u00fc trimestrd\u0259 m\u00fcnt\u0259z\u0259m olaraq izl\u0259nilm\u0259lidir. Funksional laxtalanma faktorlar\u0131n\u0131n s\u0259viyy\u0259si \u00e7ox a\u015fa\u011f\u0131d\u0131rsa, do\u011fu\u015f zaman\u0131 v\u0259 sonras\u0131nda profilaktik m\u00fcalic\u0259 verilm\u0259lidir. Do\u011fu\u015f zaman\u0131 v\u0259 sonras\u0131nda qanaxma riskini daha da m\u0259hdudla\u015fd\u0131rmaq \u00fc\u00e7\u00fcn h\u0259kiminiz ixtisasla\u015fm\u0131\u015f hematoloqlarla birlikd\u0259 i\u015fl\u0259m\u0259k q\u0259rar\u0131na g\u0259l\u0259 bil\u0259r v\u0259 ya ixtisasla\u015fm\u0131\u015f x\u0259st\u0259xanada do\u011fu\u015f etm\u0259yi t\u00f6vsiy\u0259 ed\u0259 bil\u0259r.1-3<\/p>\n

Do\u011fulmam\u0131\u015f u\u015fa\u011f\u0131n\u0131z\u0131n da VWD olmas\u0131 m\u00fcmk\u00fcnd\u00fcr. VWD olan k\u00f6rp\u0259l\u0259rin \u0259ks\u0259riyy\u0259tind\u0259 do\u011fu\u015f zaman\u0131 qanaxma problemi olmasa da, laz\u0131mi t\u0259dbirl\u0259rin g\u00f6r\u00fclm\u0259si \u00fc\u00e7\u00fcn bu ehtimaldan x\u0259b\u0259rdar olmaq vacibdir. Buna g\u00f6r\u0259 d\u0259, valideynl\u0259rind\u0259n birind\u0259 a\u011f\u0131r VWD olan ail\u0259l\u0259r\u0259 yaln\u0131z VWD olan bir u\u015fa\u011f\u0131n olmas\u0131 bar\u0259d\u0259 deyil, h\u0259m d\u0259 hamil\u0259liy\u0259 v\u0259 do\u011fu\u015f \u00fcsuluna t\u0259sirl\u0259ri bar\u0259d\u0259 m\u0259sl\u0259h\u0259t verilm\u0259lidir.1-3<\/p>\n

\u018fh\u0259miyy\u0259tli olan odur ki, b\u00fct\u00fcn bu riskl\u0259r d\u00fczg\u00fcn monitorinq v\u0259 sizin v\u0259 k\u00f6rp\u0259nizin do\u011fu\u015fdan \u0259vv\u0259l, do\u011fu\u015f zaman\u0131 v\u0259 sonras\u0131nda qay\u011f\u0131 \u00fc\u00e7\u00fcn m\u00fcalic\u0259 plan\u0131 il\u0259 effektiv \u015f\u0259kild\u0259 idar\u0259 oluna bil\u0259r.3,4<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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References<\/h5>\r\n\t\t\t\t\t\t\t
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  1. https:\/\/www.nhs.uk\/conditions\/von-willebrand-disease\/;<\/a> last accessed Feb 2023.<\/li>\n
  2. https:\/\/www.cdc.gov\/ncbddd\/vwd\/women.html;<\/a> last accessed Feb 2023.<\/li>\n
  3. Leebeek FWG, et al. Blood 2020; 136:2143-50.<\/li>\n
  4. Janbain M and Kouides P Int J Womens Health 2022; 14:1307-13.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n\r\n\r\n\r\n\r\n
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    Psixoloji sa\u011flaml\u0131q
    <\/div><\/h4><\/div>\r\n\t
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    Qanaxma poz\u011funlu\u011fu h\u0259yat\u0131n\u0131za d\u0259rin t\u0259sir g\u00f6st\u0259r\u0259 bil\u0259r. Qanaxma riski fiziki sa\u011flaml\u0131\u011f\u0131n\u0131za, emosional v\u0259 zehni rifah\u0131n\u0131za, davran\u0131\u015f\u0131n\u0131za, ail\u0259nizl\u0259 m\u00fcnasib\u0259tl\u0259riniz\u0259 v\u0259 sosial h\u0259yat\u0131n\u0131za t\u0259sir g\u00f6st\u0259r\u0259 bil\u0259r.<sup>1<\/sup> Simptomlar g\u00fcnd\u0259lik f\u0259aliyy\u0259tl\u0259rinizi m\u0259hdudla\u015fd\u0131ra, g\u0259l\u0259c\u0259kl\u0259 ba\u011fl\u0131 narahatl\u0131qlara s\u0259b\u0259b ola v\u0259 intim m\u00fcnasib\u0259tl\u0259r bar\u0259d\u0259 \u00f6z\u00fcn\u00fcz\u00fc etibars\u0131z hiss etm\u0259yiniz\u0259 s\u0259b\u0259b ola bil\u0259r. \u00c7ox vaxt bu m\u0259hdudiyy\u0259tl\u0259r v\u0259 narahatl\u0131qlar ail\u0259 \u00fczvl\u0259rin\u0259 d\u0259 t\u0259sir edir. Qanaxma poz\u011funlu\u011fu diaqnoz qoyulmad\u0131qda, h\u0259yat keyfiyy\u0259tin\u0259 t\u0259sir daha da arta bil\u0259r, t\u0259\u0259ss\u00fcf ki, tez-tez fon Villebrand x\u0259st\u0259liyind\u0259 (VWD)<\/a> oldu\u011fu kimi.<sup>1-3<\/sup> Diaqnoz qoyulmam\u0131\u015f VVD olan insanlar m\u00fcvafiq m\u00fcalic\u0259 v\u0259 d\u0259st\u0259y\u0259 \u00e7\u0131x\u0131\u015f \u0259ld\u0259 ed\u0259 bilmirl\u0259r. Sosial d\u0259st\u0259k olmadan VVD x\u0259st\u0259l\u0259ri tez-tez narahatl\u0131q v\u0259 depressiya \u0259lam\u0259tl\u0259ri g\u00f6st\u0259rirl\u0259r.<sup>2,3<\/sup> Diaqnoz qoyulduqdan sonra bel\u0259, VVD-nin \u00f6m\u00fcrl\u00fck bir v\u0259ziyy\u0259t olaraq qald\u0131\u011f\u0131n\u0131 v\u0259 x\u0259st\u0259l\u0259r, onlar\u0131n ail\u0259l\u0259ri v\u0259 \u0259traf\u0131ndak\u0131lar \u00fc\u00e7\u00fcn davaml\u0131 \u00e7\u0259tinlikl\u0259r yaratd\u0131\u011f\u0131n\u0131 ba\u015fa d\u00fc\u015fm\u0259k vacibdir.<\/strong><\/p>\n

    A bleeding disorder can have a tremendous impact on your life. The risk of bleeding may affect your physical health, your emotional and mental state, your behaviour, relationships with family and social life.1 The symptoms may restrict your daily activities, lead to concerns about the future, and make you feel insecure about intimate relationships. Often, these restrictions and concerns will also affect family members. The impact on quality of life can be even more pronounced if the bleeding disorder is undiagnosed, as is unfortunately often the case with von Willebrand disease<\/a> (VWD).1-3<\/sup> People with undiagnosed VWD do not have access to appropriate treatment and support. Without social support, patients with VWD often show signs of anxiety and depression.2,3<\/sup> Even after the diagnosis is made, it is important to acknowledge that VWD remains a life-long condition with persistent challenges for patients, their families and their environment.<\/strong><\/p>\n

    Valideynlik fon Villebrand x\u0259st\u0259liyi (VVX) olan insanlar \u00fc\u00e7\u00fcn unikal \u00e7\u0259tinlikl\u0259r yarad\u0131r. VVX v\u0259 dig\u0259r qanaxma x\u0259st\u0259likl\u0259ri irsi xarakter da\u015f\u0131y\u0131r v\u0259 diaqnoz ail\u0259 planlamas\u0131na \u0259h\u0259miyy\u0259tli d\u0259r\u0259c\u0259d\u0259 t\u0259sir g\u00f6st\u0259r\u0259 bil\u0259r. Qanaxma poz\u011funlu\u011fu olan u\u015fa\u011f\u0131n valideyni olaraq, u\u015fa\u011f\u0131n\u0131z\u0131n x\u0259st\u0259liyi il\u0259 ba\u011fl\u0131 g\u00fcnahkarl\u0131q v\u0259 \u00f6z\u00fcn\u00fc g\u00fcnahland\u0131rma hissl\u0259ri ya\u015faya bil\u0259rsiniz. Bundan \u0259lav\u0259, qanaxma qorxusu u\u015fa\u011f\u0131n\u0131z\u0131 h\u0259ddind\u0259n art\u0131q qoruma\u011fa v\u0259 sosial v\u0259 ya idman f\u0259aliyy\u0259tl\u0259rini m\u0259hdudla\u015fd\u0131rma\u011fa s\u0259b\u0259b ola bil\u0259r. Bununla bel\u0259, h\u0259r hans\u0131 bir qoruyucu t\u0259dbir u\u015fa\u011f\u0131n d\u00fcnyan\u0131 ara\u015fd\u0131rmaq v\u0259 \u00f6z\u00fcn\u0259inam inki\u015faf etdirm\u0259k azadl\u0131\u011f\u0131 il\u0259 balansla\u015fd\u0131r\u0131lmal\u0131d\u0131r ki, bu da onun inki\u015faf\u0131 \u00fc\u00e7\u00fcn vacibdir. Sad\u0259 qoruyucu t\u0259dbirl\u0259rin, uy\u011fun f\u0259aliyy\u0259tl\u0259rin se\u00e7ilm\u0259sinin v\u0259 effektiv m\u00fcalic\u0259y\u0259 asanl\u0131qla \u00e7\u0131x\u0131\u015f\u0131n birl\u0259\u015fm\u0259si bu tarazl\u0131\u011f\u0131 tapma\u011fa k\u00f6m\u0259k ed\u0259 bil\u0259r. 2,4<\/p>\n

    Yeniyetm\u0259lik VVX olan insanlar \u00fc\u00e7\u00fcn x\u00fcsusil\u0259 \u00e7\u0259tin bir d\u00f6vr ola bil\u0259r. Qanaxma poz\u011funlu\u011funuzu idar\u0259 etm\u0259k \u00fc\u00e7\u00fcn daha \u00e7ox m\u0259suliyy\u0259t da\u015f\u0131d\u0131qca, t\u0259yin olunmu\u015f m\u00fcalic\u0259y\u0259 riay\u0259t etm\u0259yiniz vacibdir. X\u0259st\u0259liyin \u00f6z\u00fcn\u00fc idar\u0259 etm\u0259si yaln\u0131z qanaxma v\u0259 a\u011fr\u0131 riskini azaltmaqla yana\u015f\u0131, h\u0259m d\u0259 qabiliyy\u0259tl\u0259riniz\u0259 inam ver\u0259c\u0259k, yax\u015f\u0131 zehni sa\u011flaml\u0131\u011f\u0131n\u0131z\u0131 v\u0259 tam sosial h\u0259yat\u0131 qoruma\u011fa k\u00f6m\u0259k ed\u0259c\u0259k. 2,6<\/p>\n

     <\/p>\n

    Qanaxma poz\u011funlu\u011fu olan qad\u0131nlar\u0131n zehni sa\u011flaml\u0131\u011f\u0131 v\u0259 h\u0259yat keyfiyy\u0259ti \u00e7ox vaxt onlar\u0131n x\u0259st\u0259liyind\u0259n g\u00fccl\u00fc \u015f\u0259kild\u0259 t\u0259sirl\u0259nir. \u018fg\u0259r sizd\u0259 VWD varsa, a\u011f\u0131r menstrual qanaxma<\/a> (HMB) da ya\u015fama ehtimal\u0131n\u0131z \u00e7ox y\u00fcks\u0259kdir. Qan itkisi v\u0259 q\u0131colma g\u00fcnd\u0259lik h\u0259yata, idmana v\u0259 dig\u0259r fiziki f\u0259aliyy\u0259tl\u0259r\u0259, sosial v\u0259 romantik qar\u015f\u0131l\u0131ql\u0131 \u0259laq\u0259l\u0259r\u0259 g\u00fccl\u00fc \u015f\u0259kild\u0259 mane ola bil\u0259r. HMB tez-tez m\u0259kt\u0259bd\u0259 v\u0259 ya i\u015fd\u0259 vaxt itkisin\u0259 d\u0259 s\u0259b\u0259b olur. T\u0259\u0259ss\u00fcf ki, HMB tez-tez i\u015fd\u0259n \u00e7\u0131xar\u0131lma v\u0259 dam\u011falanma il\u0259 qar\u015f\u0131la\u015f\u0131r. F\u0259aliyy\u0259tl\u0259rd\u0259 v\u0259 qar\u015f\u0131l\u0131ql\u0131 \u0259laq\u0259l\u0259rd\u0259 bu m\u0259hdudiyy\u0259tl\u0259r v\u0259 tan\u0131nman\u0131n olmamas\u0131 s\u0259b\u0259bind\u0259n VWD olan qad\u0131nlar tez-tez t\u0259crid, nailiyy\u0259t itkisi v\u0259 \u0259hval-ruhiyy\u0259nin a\u015fa\u011f\u0131 olmas\u0131 il\u0259 z\u0259if zehni sa\u011flaml\u0131q ya\u015fay\u0131rlar. \u018fh\u0259miyy\u0259tli olan odur ki, HMB m\u00fcalic\u0259 edil\u0259 bil\u0259r v\u0259 m\u00fcalic\u0259 VWD v\u0259 HMB olan qad\u0131nlar\u0131n h\u0259yat keyfiyy\u0259tini yax\u015f\u0131la\u015fd\u0131ra bil\u0259r.4,5<\/p>\n

    Qanaxma poz\u011funlu\u011funuzun zehni v\u0259 sosial t\u0259sirini m\u0259hdudla\u015fd\u0131rma\u011f\u0131n a\u00e7arlar\u0131ndan biri g\u00fccl\u00fc d\u0259st\u0259k \u015f\u0259b\u0259k\u0259sidir. Buraya ail\u0259niz v\u0259 dostlar\u0131n\u0131z, el\u0259c\u0259 d\u0259 sosial xidm\u0259tl\u0259r v\u0259 s\u0259hiyy\u0259 i\u015f\u00e7il\u0259ri daxil ola bil\u0259r.3 \u00d6z\u00fcn\u00fcz\u00fc pis hiss edirsinizs\u0259, narahat v\u0259 ya depressiyadas\u0131n\u0131zsa, hissl\u0259riniz bar\u0259d\u0259 h\u0259kiminizl\u0259 v\u0259 ya m\u00fcalic\u0259 m\u0259rk\u0259zinizd\u0259ki m\u00fct\u0259x\u0259ssisl\u0259rl\u0259 d\u0259 dan\u0131\u015f\u0131n. Onlar siz\u0259 d\u0259st\u0259k ola v\u0259 qanaxma poz\u011funlu\u011fu olan insanlar\u0131n zehni sa\u011flaml\u0131\u011f\u0131n\u0131 qorumaq \u00fc\u00e7\u00fcn m\u00fct\u0259x\u0259ssisl\u0259r t\u0259r\u0259find\u0259n haz\u0131rlanm\u0131\u015f \u00e7oxsayl\u0131 faydal\u0131 m\u0259nb\u0259l\u0259r\u0259 y\u00f6nl\u0259ndir\u0259 bil\u0259c\u0259kl\u0259r. M\u00fcalic\u0259 m\u0259rk\u0259zind\u0259ki i\u015f\u00e7il\u0259r h\u0259m\u00e7inin qanaxma poz\u011funlu\u011fu olan insanlarla i\u015fl\u0259m\u0259k t\u0259cr\u00fcb\u0259si olan psixoloqlar v\u0259 m\u0259sl\u0259h\u0259t\u00e7il\u0259r tapmaqda siz\u0259 k\u00f6m\u0259k ed\u0259 bil\u0259rl\u0259r. H\u0259m\u00e7inin yerli x\u0259st\u0259 qrupuna m\u00fcraci\u0259t etm\u0259yinizi t\u00f6vsiy\u0259 edirik. Orada VWD il\u0259 ba\u011fl\u0131 t\u0259cr\u00fcb\u0259nizi, emosiyalar\u0131n\u0131z\u0131 v\u0259 g\u00f6zl\u0259ntil\u0259rinizi m\u00fczakir\u0259 ed\u0259 v\u0259 dig\u0259r x\u0259st\u0259l\u0259rd\u0259n praktik m\u0259sl\u0259h\u0259tl\u0259r ala bil\u0259rsiniz. VWD nadir bir x\u0259st\u0259likdir, ancaq siz t\u0259k deyilsiniz v\u0259 k\u00f6m\u0259k \u0259linizd\u0259dir.<\/p>\n<\/div> \r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t\t\t\t\t\t\t\t

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    References<\/h5>\r\n\t\t\t\t\t\t\t
      \n
    1. van Hoorn ES, et al. Haemophilia 2022; 28:197-214.<\/li>\n
    2. https:\/\/www.hemophilia.org\/sites\/default\/files\/document\/files\/nurses-guide-chapter-13a-child-development-with-bleeding-disorder-transition.pdf<\/a>; last accessed Mar 2023.<\/li>\n
    3. Roberts JC, et al. Haemophilia 2022; doi: 10.1111\/hae.14725.<\/li>\n
    4. VanderMeulen H, et al. Hematology Am Soc Hematol Educ Program 2022 1: 631-6.<\/li>\n
    5. Sanigorska A, et al. Res Pract Thromb Haemost 2022; 6:e12652.<\/li>\n
    6. McLaughlin JM, et al. Health and Quality of Life Outcomes, 2017: 15:67.<\/li>\n<\/ol>\n\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t<\/div>\r\n\t\t\t\t\t\t\t\t\t\t\r\n\t\t\t\t<\/div>\r\n\t\t\t\t\r\n\t\t\t\t\r\n\t\t\t\t\t\t\t\r\n\r\n\t\t\r\n\t<\/div>\r\n<\/div>\r\n\n\n
      \n
      References<\/h6>\n<\/div>\n\n
      \n
        \n
      1. Connell NT et al. Blood Advances<\/em> 2021; 5:301-25.<\/li>\n<\/div>\n\n
        \n
      2. Roberts JC et al. Haemophilia<\/em> 2022; doi:10.1111\/hae.14725.<\/li>\n<\/div>\n\n
        \n
      3. Rae C et al. Haemophilia 2013; 19:385-91.<\/li>\n<\/div>\n\n
        \n
      4. De Wee et al. J Thromb Haemost<\/em> 2010; 8:1492-9.<\/li>\n<\/div>\n\n
        \n
      5. De Wee et al. J Thromb Haemost<\/em> 2011; 9:502-9.<\/li>\n<\/div><\/ol>\n<\/div>","protected":false},"excerpt":{"rendered":"

        Fon Villebrand x\u0259st\u0259liyinin (FVX) m\u00fcalic\u0259 variantlar\u0131 hans\u0131lard\u0131r? Valideyn olaraq, FVX-li u\u015fa\u011f\u0131ma \u0259n yax\u015f\u0131 \u015f\u0259kild\u0259 nec\u0259 qulluq ed\u0259 bil\u0259r\u0259m? \u00d6z\u00fcm \u00fc\u00e7\u00fcn \u0259n uy\u011fun m\u00fcalic\u0259ni nec\u0259 tapa bil\u0259r\u0259m? FVX ail\u0259 planlamas\u0131 bax\u0131m\u0131ndan n\u0259 dem\u0259kdir? FVX sosial v\u0259 ail\u0259 h\u0259yat\u0131na nec\u0259 t\u0259sir edir v\u0259 bu hallarda n\u0259 etm\u0259k olar? Fon Villebrand x\u0259st\u0259liyi (FVX) il\u0259 ya\u015famaq bir s\u0259yah\u0259tdir v\u0259 […]<\/p>\n","protected":false},"author":1,"featured_media":1663,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false},"acf":[],"yoast_head":"\nM\u0259n FVX il\u0259 ya\u015fay\u0131ram - Azerbaijan<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/vwdtest.com\/az\/vwd-il\u0259-yasayiram\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"M\u0259n FVX il\u0259 ya\u015fay\u0131ram - Azerbaijan\" \/>\n<meta property=\"og:description\" content=\"Fon Villebrand x\u0259st\u0259liyinin (FVX) m\u00fcalic\u0259 variantlar\u0131 hans\u0131lard\u0131r? Valideyn olaraq, FVX-li u\u015fa\u011f\u0131ma \u0259n yax\u015f\u0131 \u015f\u0259kild\u0259 nec\u0259 qulluq ed\u0259 bil\u0259r\u0259m? \u00d6z\u00fcm \u00fc\u00e7\u00fcn \u0259n uy\u011fun m\u00fcalic\u0259ni nec\u0259 tapa bil\u0259r\u0259m? FVX ail\u0259 planlamas\u0131 bax\u0131m\u0131ndan n\u0259 dem\u0259kdir? FVX sosial v\u0259 ail\u0259 h\u0259yat\u0131na nec\u0259 t\u0259sir edir v\u0259 bu hallarda n\u0259 etm\u0259k olar? 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